| Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Hi, I have a question. I started eating food by mouth this week. Also I am having dry mouth issues. I noticed, on my inside cheeks, both sides of mouth in the back by molars. There are patches of bumps. They dont hurt, but I was wondering if this was due to damaged saliva glandes! Or what could it be. Thank u.
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | This is one of the after effects of having rads. It will gradually get a little better. Many of us will always carry a water bottle with us everywhere we go due to dry mouth.
There isnt much that can be done to help the dry mouth problem. Sleep with a humidifier, carry a water bottle, or try prescription medication pilocarpine (works for some). ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Thanks christine. So the lumps on my cheeks, back by my glands, and the dry mouth are due to radiation. What is weird is, it feels like my mouth is trying to make some saliva... ty
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | Im not sure about the lumps, sorry I misread your post. That should get checked out by your ENT.
The dry mouth unfortunately is normal. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Hi, it seemsl the lumps do go awa during the night. Most anyways. I am thinking its due to me chewing my food back there. I pray.
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | I just looked close at these, and they look clear. Like water blisters.
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | I had the water blister like-bumps after radiation. They would come and go, and eventually appear less frequently. It's been 8 years since I had radiation, so I don't recall what my doctor said they were. Definitely check with your doctor.
Your mouth is still healing, so it is a good idea to rinse after eating - just even a salt water rinse. Also, watch what you eat. Stick with soft food, avoid spicy food, or anything that could irritate your mouth. A few months after RT, I bit into a sandwich that had a hot pepper in it and almost immediately I got blisters in my mouth. Even today I watch what I eat as my mouth is still very sensitive.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Were they back by your molars.i have them on both sides, on both cheeks. They are not white, no pain, and no blood. I actually feel ok, little week, but Im ok. I ate mashed potatoes and soft turkey. It feels like inside of mouth is swollen. Feels weird.. thanks
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I still get those from time to time but mostly on the inside of my lower lip in the side with the most rads.
I would still contact your doctor.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Yep, will do. I also have like a metallic taste in mouth..thanks
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | |
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