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#184612 08-26-2014 05:56 PM
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Hi, I have a question. I started eating food by mouth this week. Also I am having dry mouth issues. I noticed, on my inside cheeks, both sides of mouth in the back by molars. There are patches of bumps. They dont hurt, but I was wondering if this was due to damaged saliva glandes! Or what could it be. Thank u.


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
beermanx #184633 08-26-2014 08:41 PM
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This is one of the after effects of having rads. It will gradually get a little better. Many of us will always carry a water bottle with us everywhere we go due to dry mouth.

There isnt much that can be done to help the dry mouth problem. Sleep with a humidifier, carry a water bottle, or try prescription medication pilocarpine (works for some).


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
beermanx #184635 08-26-2014 09:37 PM
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Thanks christine. So the lumps on my cheeks, back by my glands, and the dry mouth are due to radiation. What is weird is, it feels like my mouth is trying to make some saliva... ty


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
beermanx #184644 08-27-2014 04:17 AM
Joined: Jun 2007
Posts: 10,507
Likes: 6
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Im not sure about the lumps, sorry I misread your post. That should get checked out by your ENT.

The dry mouth unfortunately is normal.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
beermanx #184645 08-27-2014 06:27 AM
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Posts: 61
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Hi, it seemsl the lumps do go awa during the night. Most anyways. I am thinking its due to me chewing my food back there. I pray.


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
beermanx #184657 08-27-2014 02:19 PM
Joined: Aug 2014
Posts: 61
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I just looked close at these, and they look clear. Like water blisters.


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
beermanx #184658 08-27-2014 03:02 PM
Joined: Jan 2006
Posts: 756
Likes: 1
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I had the water blister like-bumps after radiation. They would come and go, and eventually appear less frequently. It's been 8 years since I had radiation, so I don't recall what my doctor said they were. Definitely check with your doctor.

Your mouth is still healing, so it is a good idea to rinse after eating - just even a salt water rinse. Also, watch what you eat. Stick with soft food, avoid spicy food, or anything that could irritate your mouth. A few months after RT, I bit into a sandwich that had a hot pepper in it and almost immediately I got blisters in my mouth. Even today I watch what I eat as my mouth is still very sensitive.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
beermanx #184660 08-27-2014 03:27 PM
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Posts: 61
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Were they back by your molars.i have them on both sides, on both cheeks. They are not white, no pain, and no blood. I actually feel ok, little week, but Im ok. I ate mashed potatoes and soft turkey. It feels like inside of mouth is swollen. Feels weird.. thanks


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
beermanx #184667 08-27-2014 06:57 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
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I still get those from time to time but mostly on the inside of my lower lip in the side with the most rads.

I would still contact your doctor.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
beermanx #184668 08-27-2014 06:59 PM
Joined: Aug 2014
Posts: 61
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Yep, will do. I also have like a metallic taste in mouth..thanks


Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.

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