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Joined: May 2013
Posts: 134
Senior Member (100+ posts)
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Senior Member (100+ posts)

Joined: May 2013
Posts: 134
The weight loss snowball can get so much momentum it's very hard to stop. My redline was 35 lbs and i lost that plus 10 more during the week of hell. I needed a new mask at the 6 week mark (out of 8). My original was loose enough that they had a hard time lining up the IMRT.


Dx March 2011 via FNA (49 yrs old)
SCC BoT
HPV+ exact strain unknown
Stage IVa T3N2cM0
Cisplatin x 3, IMRT x 40 (7267 cGy)
One node removed post-treatment (rad dmg)
Clean PET 10/28/11
Swallow therapy
Joined: Dec 2011
Posts: 126
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Dec 2011
Posts: 126
i found cream of wheat with lots of butter was a non-offensive food to eat. Also, soft scrambled eggs with no salt didn't bother me too much. if you can, supplement your meals with ensure. i didn't lose much weight until i finished treatment. during treatment i was supplementing meals with ensure, but once i finished and my taste buds started coming back i couldn't bring myself to drink the ensure (I really hated it). Good luck!


Emily - 24 years old at diagnosis
HPV-, no risk factors
T2N2b Squamous Cell Carcinoma
Left oral tongue, poorly differentiated
Hemiglossectamy, reconstruction, partial neck dissection
30 Radiation treatments, weekly chemo (cisplatin)
1/13/12 last day of treatment
Diagnosed October 2011
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