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ak123 #184885 09-06-2014 06:01 AM
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
Don,

1. I woudn't do it again. There are other less toxic options with the same outcome for HPV oropharynx cancer, and just may be an overkill, pun intended. My response was different, beyond brutal, but my cancer was gone just from the 5 days TPF, that almost killed me, which I only was able to later find out after 9 months. Laying in a hospital bed for 6 months, in isolation, being told you're too sick to have anything done, let alone not be able to walk, was the worst. As such, that's why my cancer was able to spread, had more recurrences, 8, but each their own. One day I'll write about my experience.

2. HPV-16 is the high risk HPV variant, which is the type mostly associated with HPV oropharyngeal cancer. To a lesser extent, HPV 18. There are about 150 HPV types, some simple warts, and about 15 are high risk that can go on to cause cancer, in some, like ours.

http://oralcancernews.org/wp/study-...ncer-patients-to-vary-depending-on-site/

3. Yes, being HPV-16 positive, p16 positive ( tumor suppressor gene) in oropharyngeal cancer is good, but with other cancers being p16 positive is a negative factor, and reduces risk of survival.

4. Yes, HPV negative is "usually" associated with smoking , drinking, with poorer outcome. Some HPV seems to respond like smoking, drinking caused does, more aggressive.

http://www.news-medical.net/news/20...-positive-and-HPV-negative-patients.aspx




I probably confused it more. The more I know the less I understand too smile


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






ak123 #185018 09-09-2014 10:23 AM
Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
Hi there... For me cisplatin was a non issue. I was mildly nauseated by it - that's it.

Hairloss is caused by rads usually NOT cis.

I lost ALL my hair from the top of my ears down thanks to rads, and it thinned out all over the left side where I was receiving the bulk of rads. (I had bilateral radiation to my neck and my mouth and tongue was hit from the left side.

Cis can damage ears so a hearing test is important.
And it is very hard on the kidneys. my hospital got around that by keeping me in over night on infusion days. They ran an IV for 24 hours and I lived in the bathroom for the whole time. ;o)

drink drink drink...

hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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