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| | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) |  Gold Member (200+ posts)
Joined: Aug 2011 Posts: 269 | Hi Estelle, I'm really glad you shared what happened with this forum. I love what david said "you just can't understand some people period!" That's it in a nutshell.
Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!
| | | | | Joined: Feb 2014 Posts: 1 Member | | Member
Joined: Feb 2014 Posts: 1 | Estelle you are WELCOME!!! | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Facebook Is a weird place you get all kinds... I would never presume to tell a person to man up. (Or woman up) to be honest we all have our own pain tolerances and I'd be the first to admit there are many many others out there who've had a brutal time of it - moreso than I've had. I've been blessed. Admittedly it was no picnic (far from it) but I've heard a lot of stories that were far worse. No one should minimize another's pain.
As for the see your dr. Out of context it's hard to read into it. Perhaps it was meant to be genuine advice. It really depends on what you're asking but I can say that it's not necessarily bad advice, or maybe the reader wanted to reply but was in a hurry. Regardless, I find drs to e very helpful at a lot of things but if it's about side effects a lot of people here probably can give you a deeper look into the fall out for treatment - hugs...
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2007 Posts: 211 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2007 Posts: 211 | Dear Estelle,
What an incredibly upsetting experience. I searched for forums when my husband was diagnosed and chose this one because it is moderated and there are policies (and consequences) for what is posted. It also seems to me that there are an increasing number of internet "trolls" who hide under the veil of anonymity and enjoy posting hurtful comments to others. I'm not sure if that's what happened in your case but at the very least, comments derogating someone's physical and emotional pain are pointless and hurtful.
Warmly- Sophie H.
Sophie T.
CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016
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