Previous Thread
Next Thread
Print Thread
Page 1 of 4 1 2 3 4
#184390 08-22-2014 07:17 PM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
OP Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
I have to eat part of my nutrition as blended food. I finally a year ago bit the bullet and bought the gold standard of blenders the VitaMix. It isn't really a blender, and anyone that has one knows what I mean. To say the thing is amazing is an understatement. Of course there are those here that are on temporary or life long PEG tube feeding, and this is THE blender that will let you take conventional food and make it PEG tube compatible. (AND TO THINK I LIVED OFF OF ENSURE WITH MINIMUM NUTRITIONAL VALUE FOR ALMOST A YEAR AND A HALF) I mean it turns everything that I can put into it into liquid, and I have put some pretty strange things in it. I will elaborate on this if you are interested in future posts. My wife has become a huge blender food drinker as she is a health nut to the extreme and a serious over 50 athlete.

So I realized after participating in other support forums (life-long PEG forums in particular) how important this piece of equipment is to LIFE, and quality of life. I called the company and talked to them about OCF. There is an opportunity for OCF to become an affiliate seller of these machines, and if we could generate enough interest get some special pricing on units.

The question is - do enough of the people that come to OCF want to obtain one (PEG users for sure) but also those that are just having swallowing issues, and those of course that after cancer wish to optimize the quality of their nutrition. If there is, OCF will apply and fill out all the forms with VitaMix, who will treat us differently than their other distributors as a non-profit, and there may be an opportunity to get them at some discount, and also make a small commission to be used for OCF's mission accomplishments as well.

I think this is a great opportunity for OCF and for those we serve. Would those of you here please post your desire or lack of desire for us to engage in this as there are a few hoops to jump through, and I would like to believe that in the long run it is worth it to everyone concerned. I thank you all for taking the time to weigh in.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
I think I would, depending on price and availability of funds.

My mother used one back in the 90's with her macrobiotic cooking classes. Even without blending to liquefy, it's a good kitchen appliance for soups and things like that.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)
Offline
"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
I think this is a fabulous idea. Those of us here who need them usually purchase due to the consequences of oral cancer. I purchased one last year simply so that I could blend "proper" foods for Kris to drink. He has lived off Ensure/Fortisip for far too long and I wanted him to be able to consume, good , nutritional , natural foods .
Post his total Glossectomy he can only swallow thin liquids.
Sad to say that here in NZ it cost me $1200. Couple with our reduced income post Oral cancer , this was a major hit to the pocket.
Great initiative Brian.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: Jun 2007
Posts: 10,507
Likes: 6
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 6
There have been several members who swear by the Vitamix. Ive seen many others mention the cost puts it out of their reach (myself included). That would be great to have something set up with them to help cut the cost and also help OCF at the same time.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Jan 2006
Posts: 756
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2006
Posts: 756
Likes: 1
Well, my short answer is no � because I just bought a VitaMix! And I love it!

I bought a �good� quality blender in 2006 when I was going through radiation. I used it every day for a number of months, but as my mouth started to heal I used it less and less. That is until a few years ago when I started having dental issues and eating become more time consuming and painful. So I started using the blender more often.

Well this blender wasn�t made for daily use and I broke the blades a few times, and the motor was starting to make some unusual noises. So when the blade broke again earlier this year I decided to buy a VitaMix. Over the years I read a lot of favorable comments about VitaMix so I knew that was the brand I wanted.

Based on the reviews I read on VitaMix, I expect it to last for years so I won�t be in the market for a new one, but I would be interested in some of the accessories. I see they also added a smaller one � the Personal / S30 model.

I think it is an idea worth pursuing. I will certainly tell folks to order one from OCF.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
This sounds really like a great opportunity even for non-tubies. I love making juices in the blender I have (watermelon, cantaloup, etc.) but I don't use it every day and probably would if I had a VitaMix. I also blend/liquify other things like cucumbers and freeze them in ice cube trays for use later in soups. I suppose there would be different models available? And how would the commission to OCF compare with the percentage that goes to OCF from Amazon orders? I notice that Amazon also offers the VitaMix and their highest Amazon price is around $600 but there are several models with varying prices. VitaMix also has free shipping.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
PS to my above message: How about a raffle item at one of the Awareness Walks? If only 24 people bought one $25 raffle ticket, that would be $600 and would pay for the VitaMix? Or set up something where we could donate $ to a fund to pay for a cancer survivor's VitaMix? I would certainly donate to that rather than to an ice bucket challenge. I cringe when I see somebody getting ice and water poured over their heads. In fact, if I saw someone I liked about to undergo the ice bucket torture, I would donate for them NOT to get the ice bucket torture!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
You can buy a Vitamix at Costco and or QVC around $399. I didn't do so, but heard Vitamix has a discount program for cancer patients, and know of a few breast cancer patents when I was staying at Hope Lodge who received free VitaMix "someplace" but wasn't paying much attention since I already had one.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 701
Likes: 1
This is a great idea! A few months ago, I wrote that I would be buying a VitaMix. I haven't yet so I would be one of those who will definitely do so. My issue was how to decide which model was best for us plus I LOVE the idea of an agreement with OCF. The discount would be nice and a few bucks back to OCF would be awesome.

I am also interested in recipes that are tasty. I have been using my Oster blender but I must admit that blended foods take on a different flavor than non blended. So far, Clark has not been too receptive to my blended concoctions. And as a result, he relies on Ensure to get most of his daily nutrition. I am passionate about providing him with delicious blended real food that can awaken his taste buds.

As an additional suggestion, for the OCF community, why not put together a collection of tried and true recipes that accompany the VitaMix. I would be willing to compile this into a nicely designed document. Would VitaMix help us with printing it?


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
[quote=Anne-Marie]PS to my above message: How about a raffle item at one of the Awareness Walks? If only 24 people bought one $25 raffle ticket, that would be $600 and would pay for the VitaMix? Or set up something where we could donate $ to a fund to pay for a cancer survivor's VitaMix? I would certainly donate to that rather than to an ice bucket challenge. I cringe when I see somebody getting ice and water poured over their heads. In fact, if I saw someone I liked about to undergo the ice bucket torture, I would donate for them NOT to get the ice bucket torture! [/quote]

I was thinking it would be awesome to do some type of raffle for one at the walks and then have a way to award it to one of the survivors at the walk. It really is great to have survivors and some have to travel to the walks and it can cost more than the money they raise.

The Ice Bucket Challenge was started by professional athletes. Their bodies are in much better shape than any of us. After neck rads, especially with things like the autonomic nervous system and baroreceptors compromised, it could be instant death. My son challenged me and I'm getting some packing peanuts and going to do that. It saves me $90 and honors my many ALS friends, many of which have lost their lives as well as my step-sister.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Page 1 of 4 1 2 3 4

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,924
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5