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#184226 08-13-2014 03:13 PM
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Hello Everyone

This week makes two months since my mother has completed her Radiation treatments. She seemed to be gradually feeling better but this past week she started feeling the burning from the Radiation again and she started to feel pain in her ear again. Also her neck area is still swelling up . We are starting to get concerned because each day she was feeling a little better and now she is experiencing this pain . Also her ear is hurting her again which was one of her first symptoms of oral cancer. A scan is scheduled for next week and hopefully it will be clear.


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


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Im sorry to hear your mother has had a setback. Recovery can take a very long time. Its full of ups and downs with a few setbacks too. Hopefully her new issues will not be anything serious.

Best wishes with her scan!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Hi Sweetpe - My radiation treatments went very smoothly with almost no symptoms. Recovery has been anything but smooth, a week of seemingly getting better every day followed by a week of seemingly getting worse every day. I'm 6 months post treatment now and things are finally starting to smooth out some. It may take that long for your mother to begin noticing that things are getting better. In the meantime she just has to ride it out.

Good luck with it

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

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Posts: 286
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Posts: 286
I hope your mother is in regular touch with a doctor? I see mine every two weeks and that seems about right for me. Leave it too long and the head talk starts questioning if something else is wrong, and often it isn't. It just takes a long time. Still its good to be seeing a professional regularly to monitor the progress and tell you you're on track.

Bring any new side effects to the doctor. Most are just part of the recovery, but most are treatable as well. In particular keep on top of pain. She shouldn't be trying to tough out pain, it interferes with healing.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
Joined: Sep 2006
Posts: 8,311
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Need to inform her RO now.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Apr 2014
Posts: 236
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Posts: 236
Thanks so much for the advice it helps a lot. Hopefully in time these side affects will slowly go away. I guess We are so afraid of relapse. My mom is being closely monitored from the RO and her Oncologist. We are praying for a clear scan.

Thanks Again and Prayers to everyone.


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


Joined: Jan 2013
Posts: 1,291
Likes: 1
Patient Advocate (1000+ posts)
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Posts: 1,291
Likes: 1
Sorry to hear about the complications but glad you have a scan and review soon. At this stage try not to add worry over recurrence or the cancer never being totally banished. It is very rare for cancer to return this soon with such visible physical symptoms.

It is most likely treatment related but they will sort this out next week and get some action to resolve it.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Jul 2012
Posts: 3,267
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Patient Advocate (old timer, 2000 posts)
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As suggested, see the doctor. Any pain or unusual symptoms for more than two weeks, I often waited less, the doctor usually likes to rule out a recurrence, as routine, and move on from there. I had done this many times, and was lymphdemia, and anothet was the shrinking tumor still pressing on the nerve causing ear pain, so it can be other things, but is best to let the doctor say this, and may be no more need than an office visit with an exam, discussion.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs







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