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Joined: Dec 2010
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Likes: 3
So glad you are doing well. ;o)


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Feb 2014
Posts: 17
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Joined: Feb 2014
Posts: 17
I had the same thing with the waiting. I was diagnosed on Dec 3rd 2013, appt Dec 12th, and was not scheduled for surgery until end of January 2014 because of the holidays. The only way I know if what Cheryl suggested with calling each day if there are cancelations... I wish I had done that...

Good luck to you, and keep calling, hopefully they will fit you in sooner.

Take care.
Angela


SCC 12/13 - T1N0
1/28/13 - removal of tumor Rt. Tongue clear margins
5/14 lump under chin, 8/14 FNA showed C and CAT
8/25 neck dissection, 14nodes removed 9 clear 5 with C
Extra Nodal Extension not present
9/9/14 tumor board meeting to determine RAD and poss chemo treatment

Joined: Sep 2014
Posts: 87
Likes: 2
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Sep 2014
Posts: 87
Likes: 2
I was reasonably lucky I guess. First check with doctor on Jan. 14, biopsy on Jan. 22, first informed of my diagnosis on Jan 29, consult with surgeon, pathologist & dental folks on Feb 3, consult with radiation dude on Feb 11, CT scan on Feb 17, then into surgery on Feb. 25.

Not sure if I was fast-tracked because of either how serious it looked and/or how likely I was to recover. Or perhaps I was just lucky in terms of having capacity at the time, but I also heard horror stories of much longer waits. However, I am in a major city center and they have several tiers of doctors so I'd guess it's very unlikely that they have gaps because of people on vacation at the same time.

Escalation did happen pretty quickly though. In my case, it went from just looking like a cold sore, to suddenly maybe half an inch of missing tongue in a couple of weeks. Imagine hanging a quarter on your tongue in such a way that it covers 1/2" of your tongue - thats about what it looked like by the time I saw the surgeon the first time. Quite scary stuff.


Dx 2014Jan29 (42 yr old otherwise fit nonsmoker)
SCC tongue stage III T3N0M0
subtotal glossectomy, partial neck dissection, RFFF, trach, NG tube 2014Feb25 16 days in hospital
RAD 25 zaps 2014May5-2014Jun9
Back to work, paddling & hiking shortly afterwards
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