| | Joined: Aug 2014 Posts: 5 Member | OP  Member
Joined: Aug 2014 Posts: 5 | Hi Everyone,
I am new here, should post in here.
I have white lesion on left middle ( 1cm*1cm cycle shape )of my tongue for six months now.
I am 33, non-smoker or drinker. Feeling a little numb when touch it, but no pain.
I went to hospital and took biopsy.
Below is the report.
Leukoplakia oral cavity
Microscopic description
Section show two fragments of tongue mucosa including skeletal muscle. The surface squamous epithelium is mildly hyperplastic with a vascular core and shows surface colonisation by small yeast forms and bacteria. The lamina propria contains mild chronic inflammatory cells including lymphocytes and plasma cells with a lichenoid reaction patter. There is no evidence of dyplasia or malignancy
Diagnosis -Dorsal tongue biopsy :
Mild lichenoid reaction pattern ,Mild squamous hyperplasia and surface colonisation by bacteria and fungal yeast forms; negative for dysplasia
The hospital ENT specialist told me it is nothing worry about it ( when I collect the result from him ) and I need to keep eyes on it if it is going to be bigger or blooding.
I was asking him is there any treatment to cure the lesion and he said it will be on my tongue for years & no treatments!!
I am so concerned now as oral cancer is absolutely suffer for myself and my family.
Does anyone have any suggestion what I should do or find another specialist for re-check and seek any treatments?
Much appreciated.
Thanks,
Bill
BILL Around
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Welcome to OCF. You are so very lucky to have received this report! It is NOT oral cancer. Count your blessings! Others with a similar diagnosis have had surgery to remove the lesion. I believe type or lesion has a high rate of return so it could always come back. A second opinion would be a good idea.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Aug 2014 Posts: 5 Member | | OP Member
Joined: Aug 2014 Posts: 5 | Thanks Christine,
The lesion is still on my tongue as the ENT specialist did not ask to remove it, and leave as it is, which is make me more concerned.
I have read many posts and it has high risk to turn into cancer in 2 years� time ( maybe less ) if did not take any treatments.
Really need any suggestions for what I should do.
BILL Around
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | A second opinion with an ENT who specializes in oral cancer would be my suggestion.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Do keep an eye on it and definitely react quickly if you think there have been any changes.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Welcome.
Congrats on the report as it shows you negative for cancer. It does seem like this may be a precancerous condition so do watch for changes and have it checked out regularly.
Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Aug 2014 Posts: 5 Member | | OP Member
Joined: Aug 2014 Posts: 5 | Thanks everyone,
I am going to see another specialist as I cannot let it leave there till turning into cancer.
I have a stupid question, is this lesion Leukoplakia or lichen planus based on my Diagnosis? Or they are the same thing.
BILL Around
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | They are two different things.
Let's set the record straight on leukoplakias going all the way to cancer. First white lesions are much less a threat than red ones. Leukoplakia about 25% of the time eventually converts to dysplasia, (a starting, measurable cell corruption that MIGHT continue to malignancy) and that is one step in the wrong direction. But remember it only happens 25% of the time. In all dysplastic cells you have low grade and high grade forms. Considering both types, only 25% of all dysplasia convert to malignancy. This is all out of Dr. Mark LIngen's papers who is a very highly regarded pathology researcher at UIC Chicago and an POCF advisory board member.
Yes you need to watch these things, particularly for any changes in them, but they are not wildly risky. If it starts to change I would have it burned off with a laser by an oral surgeon. It may or may not return, and it pretty much always does in tobacco users. That still doesn't mean that it progresses to cancer. There is no time period as suggested above for this to convert or do nothing. A leukoplakia could exist in you mouth for decades and do nothing. It could also grow and become dysplastic 25% of the time� but that it would do that in a 2 year time frame is a complete scientific unknown.
LIchen Planus is a different animal, it is an auto immune issue for which there is no real treatment, and does not convert to an oral cancer malignancy, though some SCC's have been found within an area of LP. That isn't the same thing as saying that LP converts to a malignancy. There is a difference between a correlation and a causation.
Your biopsy results are very clear that this is not a risky lesion, and that it has fungal qualities that can be treated and resolved. That makes this NOT leukoplakia, and a hyperplastic reaction to a fungal invasion.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Aug 2014 Posts: 5 Member | | OP Member
Joined: Aug 2014 Posts: 5 | Thanks Brian, this is very helpful! Will keep my eyes on it and hope its never happened. Cheers!
BILL Around
| | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
