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| | Joined: Jul 2014 Posts: 9 Member | OP  Member
Joined: Jul 2014 Posts: 9 | Thanks Tammy, I will keep you posted. I know we will have a lot of questions after the surgery tomorrow. You guys are awesome! Molly | | | | | Joined: Jul 2014 Posts: 9 Member | | OP Member
Joined: Jul 2014 Posts: 9 | Tammy, just wanted to let you know Katie did well with her surgery and the doctor said everything went as planned. She is in intensive care but doing pretty good. The boogie board is really coming in handy. They plan on getting her up tomorrow and walking, which is good. One day At a time. Talk to you soon.
Laryngectomy after chemo and radiation 2 1/2 years ago. Now has base of tongue tumor, had chemo to shrink tumor before surgery with no response. Surgery to remove 1/2 of tongue and rebuild is scheduled in 3 days.
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Very good news Molly. Getting up and out of bed will make her feel so much better and is wonderful for her recovery. I am a firm believer in getting up and moving.
I hope the swelling will go down quickly and she can try out that TEP again soon.
Tell her she is in our thoughts and prayers.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jul 2014 Posts: 9 Member | | OP Member
Joined: Jul 2014 Posts: 9 | Hi Tammy, thought I would let you know Katie is getting out of the hospital today! She is very positive. Her speech therapist has been working with her by giving her tongue exercises to do. She says it really hurts but she will keep doing them. The doctor does not want her to try to talk so she won't. Hopefully she can try in a couple of weeks. Thanks again for your help and prayers. Molly
Laryngectomy after chemo and radiation 2 1/2 years ago. Now has base of tongue tumor, had chemo to shrink tumor before surgery with no response. Surgery to remove 1/2 of tongue and rebuild is scheduled in 3 days.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | So glad she is doing okay. Tell her persistence is the key.. Don't give up  hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | That's really good news. A positive attitude makes a huge difference to recovery.
Hope her nutrition is going well and that she has good pain relief to cope with the exercises if she needs.
I'm sure she will do well.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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