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Joined: Jun 2014
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Joined: Jun 2014
Posts: 13
dad had lymph nodes on left side removed, is about two months out from end of radiation, and is now experiencing sharp electric like pain in various parts of the back of his head. He says it is very intense for two or three seconds and they stop. has anyone else had this? Also he still has inflammation and pain in throat. How long after end of radiation does this generally go on?


robin
My dad age 62 lymphnodes in left cheek removed (two cancerous) chemo/radiation ended May 31, 2014
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At this point of recovery, there's still times of no rhyme or reason, just random things happening. Make sure the medical oncologist is aware of any changes. Another thing that happens after radiation is a form of cervical dystonia occurs.


Best wishes for your dad.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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I am 13 months post and recently started getting the "electric shock" thing. I am certain it is related to the tightened muscles blasted by the rads. I sit in front of a monitor all day and I have to keep stretching against the tightened areas.

When I do this regularly the "shocks" are much less, even going away. When I slack off, they return. Still, it is maybe a couple times a week.

Try stretching all areas where any pain is felt. Can't hurt and you will notice some difference after just a few days.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
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Posts: 31
I don't know about the head pain, but I want to say that your dad is a fortunate man indeed to have someone like you caring about him. My wife and daughter care about me in the same manner and I can't even describe how important and uplifting it is. Keep up your good work - as hard as it can be - it is far more important than you can ever know and it makes a far greater difference than you will ever be able to measure. I admire you for doing what you do.


2/2014 SCC T4aN2bM0 HPV+ Tonsil/BOT
3/3/2014 PEG and port
3/10/2014 Chemoradiation therapy begins 260 mg Cisplatin x3, 2.12 Gy rads x33
4/23/2014 Final Cisplatin infusion
4/25/2014 Final radiation treatment
7/17/2014 PET scan. Lymph nodes clear. Primary tumor reduced both size and SUV (borderline hypermetabolic) so it's inconclusive.
8/2/2014 PEG tube removed.
11/24/2014 Saw MO, RO, ENT, and Head & Neck Surg. over past 10 days - all agree no recurrence but enhanced surveillance will continue.
Joined: Mar 2014
Posts: 286
"OCF Down Under"
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Posts: 286
I don't know anything about it, but I saw it on another thread. Something called "Lhermitte's sign"?


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.

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