Previous Thread
Next Thread
Print Thread
Page 14 of 20 1 2 12 13 14 15 16 19 20
Joined: Apr 2016
Posts: 75
Likes: 2
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Apr 2016
Posts: 75
Likes: 2
I was wondering why my tongue started burning, thanks for the update


SCC 2005 floor of mouth and neck disection
SCC 2009 partial rt tongue RAD
PEG 2009
20 HBO treatments following surgery of three teeth and 10 more HBO to follow
2015 Diced food diet due to weak muscles long term effects of radiation
2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
Joined: Apr 2008
Posts: 117
Likes: 1
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Apr 2008
Posts: 117
Likes: 1
I've been working my way through the toothpaste brands on this page: http://www.goodhousekeeping.com/health/womens-health/natural-toothpaste-ingredients-0307. I've tried Natural Dentist, Kiss My Face, and Tom's of Maine. All of them sting my mouth. I was really surprised that Tom's did, because I've heard it's so gentle. And maybe it would be, if they didn't load it up with so much mint.

My dentist gave me several of those small travel size samples bags of Biotene products. They are old enough that each one has a tiny sample of the original Biotene toothpaste. I had forgotten how gentle that stuff is. There were zero negative effects. It says it contains mint, but I can hardly detect it. This is how toothpaste should work. Too bad GSK wrecked it.


Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
Joined: Jul 2014
Posts: 5
Member
Offline
Member

Joined: Jul 2014
Posts: 5
Hello everyone, I'm new to this site. I've used Biotene gum, paste & rinse for almost 10 yr. I'm primarily looking for a good substitute for Biotene gum with paste & rinse close seconds, so this discussion has been very helpful.
Thanks to an earlier post I have contacted BioXtra and hope to get samples of their products. I've learned to stop buying products if I can get samples first. Although I do not have OC, I do have BMS (Burning Mouth Syndrome) so very much relate to problems with dry mouth and burning pain. Biotene gum is the only product I've been able to use throughout the day which helps take the edge off the burn in my mouth and stimulates
saliva. Because of other medical issues I can't use sprays, gels, lozenges etc. I've tried them all.
I realize this discussion is mostly about paste, but since other types of products have been mentioned I thought I share brands that I haven't seen mentioned. Hopefully some will be new to you and something you can consider. I'll give website links for more info:
XyliMelts Discs (really helps to stimulate saliva)Both Mint and unflavored: http://www.drugstore.com/xylimelts-discs-for-dry-mouth-mild-mint/qxp214638

OraMoist tabs: http://www.oramoist.com/

MighTeaFlow by Camellix; has an array of dry mouth products developed by 2 dentists: https://www.camellix.com/products
They will send samples if you ask. It's a newer company and they are really trying to break into the market.

Also, just as an aside, I called Biotene and told them that still showing the gum & spray on their website as available products is unconscionable. Bottom line: they don't care.




Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
When I inquired they sent me a $1.00 off coupon so they are not ALL that bad...lol


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
At a recent SPOHNC meeting, we were given samples of the "NeutraSal Dry Mouth Gum." It contains calcium, phosphate, Xylitol, Sorbitol, and relieves oral dryness, stimulates saliva flow, inhibits acid producing bacteria, prevents cavities. Not sure if it's a prescription like the oral rinse is, but may come with it's order.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






PaulB #183746 07-25-2014 08:52 AM
Joined: Jul 2014
Posts: 5
Member
Offline
Member

Joined: Jul 2014
Posts: 5
Thx for the tip on NeutralSal gum. I'll give the company a call.


Joined: Apr 2008
Posts: 117
Likes: 1
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Apr 2008
Posts: 117
Likes: 1
Even though I'm angry at Biotene, I tried the Gentle Mint version of their toothpaste. It is actually burns less than any of the others I tried.

I also found that GC (the makers of MI Paste) have an oral gel called GC Dry Mouth Gel. I tried it. It's very gentle. The flavor level is very mild. It doesn't seem to have as many helpful ingredients as Bioxtra, though. Diglycerol, water, gum carrageenan, sodium citrate, flavor, and ethylparapen.


Last edited by Andrew111; 07-25-2014 10:31 AM.

Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
PaulB #183868 07-30-2014 02:11 PM
Joined: Jul 2014
Posts: 5
Member
Offline
Member

Joined: Jul 2014
Posts: 5
PaulB, thanks for the tip on NeutraSal gum. I called the company and they are sending me a package of the gum--free sample.

For everyone's info, a RX is not needed for the gum. It's normally sold in a 10 pack box, $22.50 (at least I think that's what I was told).

KathyO #183876 07-31-2014 07:54 AM
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
Thanks for the follow-up KathyO.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jul 2009
Posts: 1,406
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,406
Whatever else they may be about, Biotene's sure making a big ad push. I see their spots all the time these days.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
Page 14 of 20 1 2 12 13 14 15 16 19 20

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5