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#183584 07-21-2014 05:40 PM
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One down and 34 to go (IMRT) and 2 to go (Cisplatin).

No issues or complaints; just wanted to lodge a post here and refer back to it as the weeks count down. And of course if any issues that I want opinions on arise.

I really feel like between all of you here already and the doctors and nurses telling me what to expect and giving it to me straight that I'm as ready as I can possibly be. It is a great gift that you here have given me. Courage.

Let's do this!

Paul


Dx at age 47 (in 2014-06), non-smoker.

2014-06 biopsy confirms SCC in BoT w/ HPV16+, Stage T4aN2M0
main tumor plus 2 nearby lymph nodes; bilateral; no metastasis?

2014-07-01 single molar (#3) extracted

2014-07-21 IMRT (35x) and Cisplatin (3x) have begun

2014-09-05 IMRT and Cisplatin finished! (only had 2x Cisplatin - weeks 1 and 4)

2014-09 to 2014-12 Recovery. I think I can...

2014-12 follow-up PET/CT scan is negative. All clear!

2016-05 all subsequent PET/CTs negative.
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Good luck Paul. Hoping you have an easy time of it.
Keep swallowing. Maintain the calories and if you need pain relief ask for it and take it.
We will all be here to help if you need.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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Your positive attitude is your best support through the trip. Don't be shy when you get some side effect and want some tips from the trenches. Good luck


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
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At least you have started and now you are walking towards that finish line and we will be with you the entire time.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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Paul, you're part of our family and we're all here for you. There will be challenges ahead, but I know you'll meet them with guts and an upbeat attitude. Whatever you face along the way you can be sure one of us has been through something just like it. So don't be afraid to ask any questions here, no matter how trivial they may seem to you.

Hang in there, buddy.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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Please dont hesitate to post often and ask questions as you go thru the next few weeks. We will help you as much as possible.

Keep your focus on your intake. That will help you get thru it easier. Every single day hit the minimums of 2500 calories and 48-64 oz of water. If you can do more, thats even better and will only help. Dont worry about gaining weight, most of us lose weight even when taking in 2500+ calories daily. Swallow every single day even if it hurts.

Hang in there, we are in your corner all the way.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 14
Thanks everyone!

So I'm starting Day 4 now. On Day 2 I awoke with pretty strong nausea but took the Compazine and lay back down and felt better. Later in the day I got the wildest bout of hiccups 3 different times. They haven't come back and I also got a prescription for Prilosec because I was complaining of a little heartburn.

On Days 2 and 3 I was noticeably tired. I took time out to grab a nap when I could and went to bed early. Hard to gauge how Day 4 will go but I don't think I'm quite as tired out of the gate.

Appetite is good, I'm eating well. No ill effects I think from radiation treatments yet (there have only been 3 of them; fourth this afternoon).


Dx at age 47 (in 2014-06), non-smoker.

2014-06 biopsy confirms SCC in BoT w/ HPV16+, Stage T4aN2M0
main tumor plus 2 nearby lymph nodes; bilateral; no metastasis?

2014-07-01 single molar (#3) extracted

2014-07-21 IMRT (35x) and Cisplatin (3x) have begun

2014-09-05 IMRT and Cisplatin finished! (only had 2x Cisplatin - weeks 1 and 4)

2014-09 to 2014-12 Recovery. I think I can...

2014-12 follow-up PET/CT scan is negative. All clear!

2016-05 all subsequent PET/CTs negative.
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The hiccups can be from the decadron (corticosteroids), infusions given with chemo. There are meds for that, if it becomes a problem.

Keep up the good work!



10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Kris had wicked, relentless hiccups after each chemo.
They went on day and night for 2 weeks. No meds stopped them. Not pleasant.
Hope day 4 went well.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
Joined: Jun 2014
Posts: 14
Member
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Joined: Jun 2014
Posts: 14
Had been a little worried about how listless I was becoming already but on Saturday I kind of rebounded and I had a very long and fulfilling day on Sunday. Got a good night sleep and feel pretty normal this morning on Monday. Going to be able to get some work in. So I'm hopeful of another couple of good weeks without being/feeling so tired and listless before I start chemo again. Feels like I may have turned a small corner.

Taste is becoming noticeable but not really a problem. Just food and drink beginning to feel more 'meh'. But I'm not having any troubles swallowing and taking in nourishment and calories. I go back for a check-up with the chemo doc this afternoon before rads and I'm sure we'll have things to talk about.

Just want to acknowledge the great and unfailing support of you folks here. My friends and family (through a caring bridge site mostly) are very complimentary about my spirits and my knowledge in the face of my situation. I know that I owe a huge part of that to the folks here now and before me.

Paul


Dx at age 47 (in 2014-06), non-smoker.

2014-06 biopsy confirms SCC in BoT w/ HPV16+, Stage T4aN2M0
main tumor plus 2 nearby lymph nodes; bilateral; no metastasis?

2014-07-01 single molar (#3) extracted

2014-07-21 IMRT (35x) and Cisplatin (3x) have begun

2014-09-05 IMRT and Cisplatin finished! (only had 2x Cisplatin - weeks 1 and 4)

2014-09 to 2014-12 Recovery. I think I can...

2014-12 follow-up PET/CT scan is negative. All clear!

2016-05 all subsequent PET/CTs negative.
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