| | Joined: Jul 2014 Posts: 29 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Jul 2014 Posts: 29 | Hubby is experiencing some significant pain of his tongue. His doc has given him pain meds to manage it until surgery, and meds are indeed helping. The pain seems to radiate to his ear and down into his neck. (Doc is aware.) What I am wondering, is this something y'all experienced, pain prior to treatment? Does that fall anywhere in the realm of pre-surgical normalcy? I have done some searching on here, but I, myself, cannot seem to find info on that-keep in mind I am not the greatest at navigating searches on forums! I'm sure there is info on here somewhere but I am coming up empty, apologies for asking, yet again, something that has been addressed before. Thank you!
Husband tongue cancer 7/01/14 (forward/right half of tongue)
43 years old at diagnosis
Partial glossectomy/node removal 7/31/14
PEG tube placed
2 mos high dose radiation
2 treatments cisplatin, 3rd was cxld due to hearing issues
cancer in both lungs, stage 4, 05/18/15
chemo port to be placed on 05/21/15
Full scan on 05/21/15
Chemo, 3-4 types (names etc coming soon) for 7 mos
4th type depends on clinical trial and if placebo or not
He is planning to defy all odds and kick this cancer!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Yes, unfortunately many of us experienced some pretty severe pain. For some the pain is what lead them to investigate and get diagnosed while others did not notice any discomfort at all. Everyone is different and will vary in what they experience. As long as his doctor is aware and the pain is managed its nothing to be overly concerned about.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2014 Posts: 29 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Jul 2014 Posts: 29 | Thank you. I seem to read a lot about folks that weren't bothered by it prior to tx, so was just wondering. He was a little concerned, too. Going to ask his doc if he can use magic mouthwash, too. It has been helpful for my dental issues and i have read on here some folks use it. During the night do you think i should wake him to take some pain meds? Because when he gets up in the morning he is in agony from having the meds wear off during the night.
Husband tongue cancer 7/01/14 (forward/right half of tongue)
43 years old at diagnosis
Partial glossectomy/node removal 7/31/14
PEG tube placed
2 mos high dose radiation
2 treatments cisplatin, 3rd was cxld due to hearing issues
cancer in both lungs, stage 4, 05/18/15
chemo port to be placed on 05/21/15
Full scan on 05/21/15
Chemo, 3-4 types (names etc coming soon) for 7 mos
4th type depends on clinical trial and if placebo or not
He is planning to defy all odds and kick this cancer!
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Pain is what lead us to diagnosis. Actually Kris had being having severe pain radiating from his jaw up to his ear for 6 months.
His GP had been treating him by manipulating his neck for a trapped nerve!
I then insisted on an MRI ......and he got diagnosed.
If either of you do get up in the night, and a safe time period has elapsed from the last dose of pain meds, then I think it reasonable for your husband to take another dose.
Not long now until treatment starts.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | If your husband sleeps all night then no need to wake him up for anything. Have the pain meds ready for him to take as soon as he wakes up. They usually only take about 15-20 minutes before they start working.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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