| | Joined: May 2014 Posts: 56 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: May 2014 Posts: 56 | It's been eight days since my husband finished his rads🇷🇺 Its good to spend some time at home as we have had to drive over two hundred miles five days a week for seven weeks...he is doing good throat is starting to fill better he drank some milk yesterday we have been keeping him plenty fluids in the peg and formula is doing good we go back for a check up tomorrow so another long trip his neck looks great
I told him he looked younger on his neck !!!! he looks so Much better we will know more as the months go. By he still has the mucus but that's gotten so much better he slept so good last night that's been the bigest upset for him trough out all this the rope mucus ,,
Larry ... Rt tonsil / SCC.. HPV16 positive RT oropharynx tonsil) lymph nodes were 13mm left level 2 node / 16mm right level 2 node /12mm right level one node... pet scan was good except tonsil & nodes,, just got peg placed still able to eat/swallow undergoing rads) and chemo. ) 70gy rads..
2chemo.finished rads July 8/2014 CT Scan clear on 8/12 pet scan October-2014-Clear/ left ear tube placement 12-15-2014
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Ask about getting a prescription for a portable suction machine while at the doctor tomorrow. You can even get the nurse to suction him out while there. He will feel so much better with all that gunk being removed. At least the ropey mucous only sticks around for a few weeks then its gone. Also using a humidifier at night while sleeping helps as does rinsing with either seltzer water or baking soda and salt water mixture.
Best wishes with your husbands continued recovery.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Yes, congrats on his finishing treatment. You've probably heard it already, but he will be fairly uncomfortable for probably 6 to 7 weeks post treatment. I thought recovery would be linear; I would feel a little less bad every day until all the side effects were gone. That's not how it was with me; some days and some weeks are better and some worse; none of them as bad as they were immediately upon completion of treatment, but it isn't linear either.
Mucositis, ropey mucous, dry mouth, throat and sinuses, thrush, trismus; these are just a few of the things to watch out for. I found the NeilMed sinus irrigator (Walmart) works wonders at removing the gunk from the sinuses.
Tell him to keep fighting, he just can't relax quite yet.
take care
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Things will start to improve.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Nov 2013 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2013 Posts: 104 | The next 4 weeks are tough, but the improvement will happen!
Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
| | | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Mar 2014 Posts: 286 | It can be a bit disheartening to realise after treatment you still have quite a way to go. I think I had unrealistic expectations, and its best to keep those in check. You guys still have a fair way to go, stay strong and remember you're not alone, even though it does seem like that after you stop the daily visits to the hospital.
Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
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