| | Joined: Oct 2012 Posts: 1,275 Likes: 7 Assistant Admin Patient Advocate (1000+ posts) |  Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | The salted fish and fermented tofu curds have been blamed for the prevalence of nasopharyngeal cancer in the southern Chinese population (Cantonese). There is a brush biopsy that can be performed to determine if one has this form of cancer, doctors also scope and use needle biopsy.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Well no more salted fish or fermented tofu curds for me (ACK!!!!!!!!) seriously even if I was NOT an odd vegetarian who hates tofu I wouldn't ever be drawn to either of those two foods.
Last edited by Cheryld; 07-06-2014 08:42 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | LOL, Cheryl. And those Asians wouldn't touch poutine. 
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Right??? Me neither... Call me a dietary freak. I think I've had it twice in my life.... Ack!!!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2014 Posts: 14 Member | | Member
Joined: Jun 2014 Posts: 14 | Having recently undergone two separate biopsies for a BOT tumor myself I wanted to share my experience.
The first, surgical, biopsy was inconclusive. The surgeon deduced that he hadn't been able to get deep enough inside the tongue (tumor embedded) to get a representative sample.
The second biopsy was done 'fine needle' where they sedated me and lay me on a CT scan bed and inserted the needle (checked the scan, moved a little more) until they were confident that they could extract a representative sample.
Just wondering if that was brought up at all - doing a fine needle style biopsy after the surgical biopsies were inconclusive?
Paul
Dx at age 47 (in 2014-06), non-smoker.
2014-06 biopsy confirms SCC in BoT w/ HPV16+, Stage T4aN2M0
main tumor plus 2 nearby lymph nodes; bilateral; no metastasis?
2014-07-01 single molar (#3) extracted
2014-07-21 IMRT (35x) and Cisplatin (3x) have begun
2014-09-05 IMRT and Cisplatin finished! (only had 2x Cisplatin - weeks 1 and 4)
2014-09 to 2014-12 Recovery. I think I can...
2014-12 follow-up PET/CT scan is negative. All clear!
2016-05 all subsequent PET/CTs negative.
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