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Joined: Oct 2012
Posts: 13
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Joined: Oct 2012
Posts: 13
Hi everyone... I joined the forum in 2012, when my father was diagnosed with squamous cell carcinoma third stage. You might find my older conversations with other members. Well, My father lost his battle on 23 march 2013. I was with him all the time. Because he said he was scared, I kept talking to him the previous night until he fell asleep. The next day, he woke up once smiled at me and that was it. This is the first time i am talking about him in front of anyone. I avoided talking about him since after the diagnosis. I did not see the necessity of sharing those moments with anyone else. And even after he is gone, i dont. May be because i fear they wont get it or they might pitty on me. And i dont want that. I have witnessed stuff a daughter should never do. Yet I have been trying my own ways to be back to normal. I write down all my feelings in the form of poetry. I write whenever i miss him. This has helped to be normal again, not my old self though. Just normal. His loss has made me realize his importance in my daily life. I am not sad. I laugh, I play pranks on my brother, I have fun with my friends. I have got a job at a firm as a consultant. Its fun, but i really wished my father was there when i brought my first pay check at home. Right now i am focussing on two of most important things in my life. My mother, who brings my father's name in every other conversations and my fathers dream to see me become a successful structural analyst.
I had to gather a lot of courage even to write here again. But i think this is the only safe space for me to talk to others and be of help if possible by any means.

Joined: Jun 2007
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 7
Im very sorry for your loss. Thank you for posting. At OCF, we do understand all the horrors of oral cancer and what patients and caregivers endure. You are so right with a daughter should never see the things you have witnessed, no caregiver ever should. Oral cancer is one terrible disease!

May you find some peace in the memories of the happier times you shared with your father. Please accept my deepest condolences.

Best wishes to you and your family.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
Hanima, thank you so much for sharing. It takes a lot of courage to open your heart to strangers.

I'm so sorry to hear about your father. As you say, the things you witnessed were horrific, yet you were by his side till the very end. What a beautiful and loving daughter you are. From any level, the blessing you received was the peace of the smile as he passed on. Your father made sure he returned your love and faithfulness by leaving you with the most precious and beautiful last memory.

My wish for you is that as time goes by, your pain is replaced by the loving and happy memories you have of your father. Work hard and be successful, however you define that. Your father was so fortunate and blessed and he is with you always.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Joined: Oct 2012
Posts: 13
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Joined: Oct 2012
Posts: 13
thank you so much for your wishes christine and uptown.... i am glad to be a part of such a noble group... i have recently started a blog which will have the poems i have written... its still a work in progress but i feel the poems i have written might connect to people like me... people who have lost their loved ones.... it will be a relief to me if anyone feels connected to them and feel motivated.....


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