Previous Thread
Next Thread
Print Thread
Page 1 of 4 1 2 3 4
#183284 07-11-2014 03:37 PM
Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 701
Likes: 1
Well, friends, my hubby is scheduled for another surgery on Monday to repair a broken jaw. Two weeks ago, he had an infection brewing in the same area of his fistula. While eating breakfast one morning, he heard a pop and experienced excruciating pain. Off to the Emergency Department where it was determined he had broken his jaw. Thank you radiation, for killing the cancer cells but, darn it, you have stealthily sneaked in once again to remind us that you are the gift that keeps on giving! His surgery is on Monday. The big question is: did the infection cause the break or did the break result in infection. The surgeon will know what he has to do once he gets in there. Geez, can my man ever get a break?

I know many of you out there have been right where Clark is today and I write knowing that you all get it. But I need to hear you. Please send me some encouraging words. I NEEED them NOW! He is totally bummed out and discouraged. There is a bit of the unknown here as his anatomy is sooooo different from the norm. But I know we are in a good place---HUP.But this is an efffin drag. Geez, he has been drinking ALL his meals, he is in PAIN, jaw is out of alignment....

I have been very quiet lately. But I have reached my limit and I am asking for support. Not doing FB this time...too public.

My best to you all�
Anita


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Anita - so sorry to hear about this latest trouble! I am glad that the surgery is set for Monday, though. Jaw pain is just miserable. It sounds like you have confidence in the surgeon, though. It's funny - veterinary surgeons seem to have a similar personality to the human variety - a good deal of confidence (some would call it ego). But they can do some pretty amazing things.
Best wishes over the weekend!
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Maria #183287 07-11-2014 04:05 PM
Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 701
Likes: 1
Thank you for responding, Maria. I just need some encouraging words right now. This is a never ending battle.


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Jan 2006
Posts: 756
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2006
Posts: 756
Likes: 1
Anita,

I am so sorry to hear this. Wow, surgery #13. What are they going to do to repair his jaw?

My problems have been minor compared to what Clark has gone through, but I can certainly understand how he feels. It seems I take one step forward and solve one issue and they have another one crop up. It really is a drag isn't it?

You are at an excellent hospital with a great doctor, so I'm sure Clark will be fine. Clark is lucky to have you in his corner as I know you will take great care of him.

Is he up to doing something special this weekend? Even if it is just a walk in the park, or a ride through the countryside. And don't forget to take time for yourself!

You both are in my thoughts and prayers. Please update when you have a chance after the surgery.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Sep 2009
Posts: 701
Likes: 1
Hi, Susan,

Years ago, Clark had a fracture that was encased in scar tissue and was stable. It seems that this fracture is in the new bone from the fibular graft. The plan is to stabilize the bones with a metal plate and also to remove the fistula. The big unknown is the condition of the bone given the infectious process. If the bone is infected, then there will be an different plan at a later date. I hate the "unknown".

Thanks for responding! I love how my buddies rally!

best�
Anita


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
Joined: Mar 2008
Posts: 404
Likes: 2
"OCF Down Under"
Platinum Member (300+ posts)
Offline
"OCF Down Under"
Platinum Member (300+ posts)

Joined: Mar 2008
Posts: 404
Likes: 2

Hi Anita

So very sorry to hear about Clark�s jaw! I truly feel for him. His condition is especially difficult and painful on top of his current day to day challenges.

Best wishes for a successful surgery and smooth recovery.

Thinking of you both!
Karen


46 yrs:
Apr 07-SCC 80% entire tongue removed,T4N1M0
Neck/D,Jaw Split, Trache 2 ops,PEG 3.5yrs
30 x rad,6 x Cisplatin,
30 x HBO
Apr'08- flap Recon + ORN Mandibulectomy
(hip bone to reconstruct jaw)
Oct'08 1 Plate out-jaw
Mar'09 Debulk flap
Sep'09/Jan&Nov'10/Feb&Jun'11/Jan&Jul'12/Oct'13/April'14-More surgery
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
My positive thoughts are with both of you, Anita, and may the surgeon find the best way to resolve this, and hope the appropriate medications ease the pain.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Oct 2008
Posts: 246
Likes: 1
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Oct 2008
Posts: 246
Likes: 1
Anita,

This is much more than anyone should have to endure. I hear you and feel how awful this must be. You are right and we agree - this stinks.

Do you need anti-anxiety meds, especially during this waiting time?

I will be thinking about both of you,
Lottie


CG to husband, dx @ age 65, nonsmoker/social drinker. Dx 5/08 SCC Stage IV, BOT T1N2aM0. 33 IMRT - completed 9/12/08. Induction Chemo (Cisplatin, Taxotere & 5FU), plus concurrent Cisplatin.
1/09 PEG removed; 5/09 neg PET/CT; 5/10 PET/CT NED
Dental extraction & HBOT 2013; ORN 2014; Debridement/Tissue Transfer & HBOT 2016
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
Anita, I am so sorry you and Clark are faced with this. Sending you some hugs and love.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Joined: Feb 2005
Posts: 118
Likes: 1
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Feb 2005
Posts: 118
Likes: 1
Anita,

I'm so sorry that you and Clark are going through this. I too have a broken mandible brought on by ORN and an infection. Mine was pathologic and occurred around May 19. I am now in hyperbaric oxygen therapy again and will have "debridement" surgery after 20 dives, followed by another 10 dives. My mandible and fistulas had been pretty stable for several years. I may have avoided a break had I been on the infection as soon as it showed up, but I didn't begin ABT for about a week. My Oral Surgeon said that WBCs will arrive on the scene and will go after weak bone as well as damaged tissue. I don't have pain fortunately. My docs agree that a break was probably inevitable, "just a matter of time."

I wish I could offer more than my wishes for a successful surgery and recovery. You are so right about the "gift" of radiation. There seems always to be a new challenge around the corner.


Be well. Zenda
12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
Page 1 of 4 1 2 3 4

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5