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#183197 07-08-2014 04:36 PM
Joined: Jun 2014
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ak123 Offline OP
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Hi everyone :

My brother is scheduled to do a neck dissection on Monday, July 14th. We were supposed to get a second opinion Last week but he was gushing blood from his tongue and he had to do another surgery to caterize his tongue. We haven't got in with another doctor and his doctor that did the surgery is out of town. They can not release the pathology report to us until he comes back in town. My brother is worried about the neck dissection and worried that if he takes out the lymph nodes then he will constantly get sick and be weak. Does this happen? Are the lymph nodes real important? Will his life be affected by removing 28 nodes?

Last edited by ak123; 07-08-2014 04:36 PM.

22 YO Brother Dx 6/17/14 w. SCC R Lateral tongue
CT scan clear LN 6/20/14
HPV-, non-smoker
R tongue, right hemiglossectomy Surgery 6/24/14
(Not reoccurrence but went to NCCC instead
R neck dissection, tracheostomy, radial free flap, R tongue dissection surg 8/11/14
PT1N2B.3 positive lymph nodes out of 13
Extranodal extension present
9-15-14 IMRT (35x) & Cisplatin (2x) begun
10-21-14 peg in. 10-31-14 1 round of carboplatin
11-4-14 IMRT rx comp
3-27-15 Recurrent tumor in lymph node, L neck diss.
10-29-15 brother passed away, 23 yrs old
ak123 #183204 07-08-2014 10:26 PM
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Posts: 57
"OCF Canuck"
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I had a neck dissection in dec 2012 before getting radiation to same area jan to march neck dissection was relatively easy don't even look like frankystein haven't been sick since recovery in April I had a dozen lymph nodes removed one was infected another partly haven't heard of many getting sick because of lack of nodes good luck ken


46 yr old non smoker moderate drinker
Lump on neck
Dx branchial cyst by fna mar 2012
Op to remove dec2012 biopsy back hpv 16 scc
Starting rads jan 31 no chemo docs say?
Finished mar13
Pet scan june 30 NED :)))
Back to work and enjoying life
Checkup aug 12 all good
ak123 #183207 07-09-2014 01:50 AM
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"OCF Kiwi Down Under"
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Kris had an initial right modified neck dissection. 6 months later he had bilateral radical neck dissection.
He has not been sick at all in the last 30 months.
Your brother need not worry.


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
ak123 #183390 07-15-2014 09:41 AM
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As it was explained to me, there are so many other nodes in the body that removing a portion of them won't do any harm, i.e. the others take over. I had all the nodes on the left side of my neck removed 5 years ago and if anything I've been healthier (from an infection point of view) since than I was before. Please keep us updated on your brother's progress. I see the surgery was scheduled for yesterday, we'd all love to hear how he's doing.

Sending good vibes your way!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
ak123 #183399 07-15-2014 04:39 PM
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Just to Mention, add, there are over 600 lymph nodes in the body, over 300 in the cervical neck, most microscopic. No one has the same amount or in the same locations. Even after my radical neck dissection, level ll-V, and subsequent neck dissections they still removed some lymph nodes each time.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






PaulB #183524 07-19-2014 09:36 AM
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Very interesting fact so many lymph nodes in the neck. Every diagnosis and patient dictate a unique treatment but I am most weary of the "surgery only" option. In most cases, with good margins, and low staging, I understand the approach.

BUT, cancer is a bastard and evil and sneaky. With that many nodes, it just seems like a cancer cell can hide anywhere and later attack.

Basing diagnosis on FNA of nodes is another question mark. With so many, how on earth can they really know which ones have cancer? They can't so neck dissection seems very much an educated guess rather than fully science and diagnostic based.

Personally, I'd think really hard about getting some chemo with any surgery only procedure. Just seems like well worth the suffering to improve the mopping up of any stray undetected and hiding cancers.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
ak123 #183527 07-19-2014 10:03 AM
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Posts: 1,406
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Don, that seems logical. Although whether to do that mopping with chemo or radiation is another question, best left up to the docs I'm sure. Maybe diagnosis and treatment have come a long way since I was diagnosed 5 years ago, but at the time both my oncologists said that I needed the rads to take care of any stray cells. Would be interesting to speak to those docs about whether they'd make the same decision today, suppose they would.... except my MO has retired.

Oh and my first FNA - of a node the size of a walnut - came back negative, which I gather isn't all that unusual.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
ak123 #184378 08-22-2014 05:08 AM
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"OCF Canuck"
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Your lymphatic system runs parallel to your circulatory system, it runs thorough your entire body, and there are many nodes!!! This is why stopping the cancer from getting there is important because once it reaches the nodes it has an easy transport system to the rest of the body.

This is why I'm an advocate for neck dissections and surgery (for NON HPV related oral cancers) and follow up radiation if the staging and invasiveness suggests it.

Cancer can be very tricky!!! Hugs


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
ak123 #184490 08-24-2014 02:36 PM
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Posts: 225
"OCF across the pond"
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Martin had a modified neck dissection and they took lymph nodes out. He catches more colds. But we also have a 3 year old who carries lots of germs collected at nursery, so I think more than the lack of lymph nodes, my daughter is the main cause of colds. He hasn't had anything serious otherwise. The GP put him on the "vulnerable" list so he gets the flu jab every year. Maybe that helps too.


Girlfriend to Martin 49 years old at diagnosis
Diagnosed with SCC unknown primary June 2008.
Cancer found in single node Stage N2A (3 to 6cm).
Tonsilectomy 16th june, Radical modified neck dissection left side 30th june.
30 TX radiotherapy ended 9th October
First comparative study scan came back clear

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