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Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
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Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
I drove myself to and from Moffitt which was an hour minimum each way as I had to go right thru the city of Tampa. Yes it was 85% interstate and yes I was able to do it until my last week of rads BUT my last week of driving convinced me I needed help because not only would I have to pull quickly off the side of the road to toss my cookies but during that last week driving I would go thru a stoplight and then seconds later question myself what color was the light. Scary, not only was I a danger to myself but others and all because I had a chip on my shoulder.

I found the combination of the radiation and that horrible poison Cisplatin to put me in a fog towards the end. I was also very weak. Take advantage of all the people that will step up to help you. Concentrate on the real important task of giving your body every chance you can to deal with this cancer and it's treatment


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Jul 2012
Posts: 3,267
Likes: 1
By the time I had my first radiation in 2010, I could hardly walk, see, and was half the person I was due to the chemo I received a year earlier, and haven't driven since. The radiation center, about 3 miles away, had a Mercedes van that picked me up at home, drive me back.

In 2012 I stayed at Hope Lodge for my 6 weeks of chemoradiation treatment. Some hospitals like MSKCC, had regularly scheduled vans from there, mine didn't, but I used access-a-ride to and from.

This past December/January I had a designated driver take me to Proton Therapy in another state, 32 miles each way, which company was worse than my treatment lol. I was glad to get under the machine! Plus I was paying $75 a day cash!

In another note, a day that I couldn't be driven I was screwed, but friends seen my need, and came forward like David mentioned. Not only did they drive me, no charge, but was taken out to eat, given a get well card, and a donation by their company! A friend of his cancer organization later made a contribution too! He said anytime I need he or his brothers would drive me, and many other people said that too, but being my usual self, not wanting to unconvienance or ask, I continued paying someone to drive me.

I had a problem getting a volunteer driver from ACS due to going cross state, tolls, no one going there, etc. No gas reimbursement or out of pocket expense like for tolls in my area.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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