| | Joined: Mar 2002 Posts: 3 Member | OP  Member
Joined: Mar 2002 Posts: 3 | Hello
I am a 17 year survivor of adenoid cystic carcinoma of parotid. I had surgery followed by 40 fractions of radiotherapy. 11 years ago I had 2 teeth extracted with the 20/10 HBO. Due to major occlusion problems I had composite bonding in 2010 and fixed upper and lower orthodontics in 2012. Braces removed in 2013 but fitted with fixed retainers. Retainers removed early 2014. Chronic pain, malocclusion and periodontal problems for past few years. I have done everything possible to save my teeth but they are all failing now. Apologies for venting | | | | | Joined: Mar 2002 Posts: 3 Member | | OP Member
Joined: Mar 2002 Posts: 3 | Maybe it is too late for help. At least I have tried. | | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | Utmost sympathy. Can't offer any advice but I know how it feels to have teeth problems and lose teeth. Hope people here have some information for you.
Best wishes
Maureen
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | Utmost sympathy. Can't offer any advice but I know how it feels to have teeth problems and lose teeth. Hope people here have some information for you.
Best wishes
Maureen
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Mar 2014 Posts: 286 | Am I reading that right? You registered in 2002 and have only done these two posts? That should earn you a reward as the ultimate lurker!
Condolences about the teeth, I guess there comes a point where they are no longer savable. When I told my dentist he had to remove 3 he was very upset, like a vet putting down a healthy dog.
I hope you end up with a solution you're happy with.
Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hi, you certainly have my sympathy. I think dental problems post radiation are completely underestimated. We as patients were certainly never told of the possibility.
Kris has had ongoing problems with his teeth. All have been root Canalled in the last 12 months. They are still breaking.
Last month he developed an ulcer on his tongue flap, caused by a top tooth pressing on it. Seems his lower jaw has shifted forward since the radiation . They are now making him a partial plate to push the jaw back into alignment.
Honestly, I too think, What next?
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Mar 2002 Posts: 3 Member | | OP Member
Joined: Mar 2002 Posts: 3 | Thanks for the sympathy and welcome.
Has anyone else had braces after radiotherapy? | | |
| Forums23 Topics18,168 Posts196,924 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
