| | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) |  Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Coughing up blood = Doctor ASAP
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2014 Posts: 56 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: May 2014 Posts: 56 | The recording is only the voice not pic video and I just keep them for questions I ask to go back and refer to them latter if needed and yes the mucus and gunk is what he spits up in the morning along with the blood
I didn't think of that being where he lays at night then in the mornings all the pressure from the coughing it makes him fill better afterwards
And I'm not sure why the ENT didn't do the surgery it was odd to me as I've read up a lot on this disease I've wondered that and ask several times
At the hospital he goes too the dr there says he thinks radation is the best and will get the tumor in the neck he says their was no need to put him trough that he mentioned the tumor size also .. it's scary to think about all.. I'm hoping I'm praying the rads shrink and completely remove the tumor so he can get his life back and we both can get back to some normal surroundings again!! Happy Father's Day!! to all the fathers
Larry ... Rt tonsil / SCC.. HPV16 positive RT oropharynx tonsil) lymph nodes were 13mm left level 2 node / 16mm right level 2 node /12mm right level one node... pet scan was good except tonsil & nodes,, just got peg placed still able to eat/swallow undergoing rads) and chemo. ) 70gy rads..
2chemo.finished rads July 8/2014 CT Scan clear on 8/12 pet scan October-2014-Clear/ left ear tube placement 12-15-2014
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | [quote=davidcpa]Coughing up blood = Doctor ASAP [/quote]
After 4-5 years, the doctors don't really get real excited about it either. Now at the gym when it happens, people start calling 911.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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