| | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) |  "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | How are you going, Laurie? I didn't have chemo which will explain somewhat milder side effects. I had Cisplatin and Taxol nearly 20 years ago, however, and can't remember my taste buds going. I put on a lot of weight because of the steroids I was given and had a massive appetite. But alas the radiation has knocked by sense of taste for a 6 (cricket metaphor) Some taste for sweetness has remained and I don't know if I can read too much into it but I have started putting tinned fruit in my shakes and can taste it. Tried some passionfruit yoghurt and think I tasted the first spoonful. After that it was vile  As Bart and Cheryl say, it will be GREAT to taste fruit and veges again. After surgery I was in love with mango lassis and pumpkin soup. All the best for this week.
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | My taste and saliva, which I think go hand n hand, didn't start to return until my 4th month post Tx. It was a small improvement but at that point it signaled the beginning. I saw a tad more improvement in my 5th month, then nothing more until my 14th month when I saw the biggest change and then a tad more at 24 months. I estimate I'm 90% of pre Tx taste a nd saliva but that's really impossibl;e to pin down because as soon as you loose your taste but forget what 100% was like.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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