Previous Thread
Next Thread
Print Thread
Page 3 of 3 1 2 3
ShellAustralia1978 #181663 05-12-2014 10:49 PM
Joined: Jan 2013
Posts: 1,291
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,291
Likes: 1
[quote]PS... highly recommended.... . a chocolate/peanut butter porter that's like drinking a Reese's Peanut Butter Cup... Paired with a piece of pumpkin or pecan pie and it's a no brainer! Mmmm smile[/quote]Well, sounds like the new "normal" for you! I can do porter but not if it tastes like a candy bar. LOL


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
donfoo #181797 05-17-2014 09:46 PM
Joined: Mar 2013
Posts: 421
Likes: 1
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Mar 2013
Posts: 421
Likes: 1
It's called "Sweet Baby Jesus". A chocolate/peanut butter stout that's more of a dessert beer than one to drink watching the game on Sunday but truly a wonderful experience. Here's my review:

Sweet Baby Jesus � DuClaw Brewing Co., Baltimore, MD

This porter beer pours thick and is a prelude to what follows. You can smell the chocolate and peanut butter as you pour it and it has a bit of hops and the malt you would expect of a porter. The taste?...Very chewy for sure! It�s like a dark chocolate Reese�s Peanut Butter cup in a glass. More a dessert beer than an everyday drinker but just plain sinful all around! Serve this with a spice pumpkin or chocolate pecan pie and it�s a no-brainer. 6.50%ABV

One more to try...

Breakfast Stout � Founders Brewing Company � Grand Rapids, MI

Wow! I have to thank Coe at the Woodstock Caf� for this one. I asked for a �chewy� dark beer and this was his recommendation. The label is cool so that�s a good start. This beer pours thick with a beautiful head and exquisite lacing. The aroma was heady with coffee, chocolate and malt overtones. The longer it sits and breathes, the better the aroma. The taste? What�s not to like? Everything and more than what you expect from what I consider the perfect stout. Coffee up front and a sweet chocolate aftertaste that just begs for another sip. At 8.30ABV you better be careful or you�ll stumble upon trying to get up from your chair after 2 of these!(experience speaking). In my college days this would have been the perfect brew with cold pizza in the morning after a night of touring the frat houses! (Warm or chilled). If this was available back then I�d be wondering if I had a few unaccounted for children in the world ~lol~ 5 star! Thanks Coe!

Positive thoughts and prayers








57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
ShellAustralia1978 #181802 05-18-2014 05:17 AM
Joined: Sep 2013
Posts: 40
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Sep 2013
Posts: 40
I've been struggling with the question of whether to have a few drinks now and then or not at all. A few of my doctors told me I shouldn't drink at all, some said in moderation. I am HPV- with unknown primary which leads me to believe that my OC had a good chance of coming from my previous alcohol consumption (3 or more drinks just about everyday for the past 40 yrs.) It sure sounds like an awful lot and really is but, I'm quite healthy ( except for the OC ). I've had a few drinks now and then since the completion of my treatment but, I just can't get over the thought of having another bout with OC because I wanted to drink again. So I have decided to quit completely. I loved my cocktails, and this will be hard to do. Whether alcohol was the cause is just my opinion based on my own research. It's just not worth the risk for me.


Age 54 at DX 06/20/13 Left Neck Mass 07/11/13 DX SCC OC T0N2bM0 Stg IVa p16 neg. 08/09/13 Tonsilectomy and Adnoidectomy, Panendoscopy. Unknown Primary. Begin RAD 09/30/13 Cisplatin 10/01&22/13 PICC 10/21/13. PEG 10/25/13 to 1/24/14. Erbitux x 3. End 35 RAD 11/22/13 Clear PET 02/25/14
ShellAustralia1978 #181807 05-18-2014 07:45 AM
Joined: Apr 2013
Posts: 319
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Apr 2013
Posts: 319
Calhoun, I went through the very same thought process. I had not yet started my first treatments when I read (courtesy of Google) that 70% of patients who did not quit drinking when they were diagnosed, had recurrences.

Like you, having just heard a litany of horror stories concerning the treatments I was about to undergo, I finished the drink I was working on (2 oz of 9 year-old Knob Creek over 4 ice cubes;) rinsed my glass and had 2 oz of Black Seal dark run, and quit drinking.

Then, just over a year later, I had my first (of 5) recurrence which was a distant metastasis in my liver.

Well shoot, now that I did have a recurrence, I asked my MO if it made any difference whether I resumed drinking or not. He laughed and confirmed that the horse was out of the stables and there was nothing to be gained by resuming moderate drinking.

I am currently finishing a cup of coffee, sweetened by an Oz of Knob Creek 9 year-old.

Trust me, it is with nothing but brotherly love and compassion that I say that I hope you never have the same opportunity to have another drink. But if you do, enjoy it to the fullest!

Bart


My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!
calhoun #181814 05-18-2014 06:35 PM
Joined: Jul 2009
Posts: 1,406
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,406
I too made the decision to take the advice of the one of my oncologists who said not to drink. The other said it was okay in moderation. But I figured better safe than sorry. At this point it's been at least 4 years since I last had a drop and although from time to time I think about it, on balance I'm good with my decision.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
ShellAustralia1978 #181817 05-18-2014 08:13 PM
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
One downside of alcohol is the vagal neuropathy many of us acquire. Alcohol is potentially a trigger for some episodic excitement. I had some Cream de Cassis last Sunday night and have been barely able to breathe all week, forced to do constant breathing treatments.

Viva the vagus


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
ShellAustralia1978 #181905 05-22-2014 04:12 AM
Joined: Sep 2013
Posts: 40
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Sep 2013
Posts: 40
Thanks for your thoughts Bart, David2 and Uptown. I'm fine with my decision. I had a lot of good times with drink and a lot of bad. Never could get a handle on that moderation thing.
Whether I caused a recurrence remains to be seen. It's time for another PET soon. At least I still have my opiates for now. I guess I'll have to follow Huey Lewis's quest. Thanks again.


Age 54 at DX 06/20/13 Left Neck Mass 07/11/13 DX SCC OC T0N2bM0 Stg IVa p16 neg. 08/09/13 Tonsilectomy and Adnoidectomy, Panendoscopy. Unknown Primary. Begin RAD 09/30/13 Cisplatin 10/01&22/13 PICC 10/21/13. PEG 10/25/13 to 1/24/14. Erbitux x 3. End 35 RAD 11/22/13 Clear PET 02/25/14
Page 3 of 3 1 2 3

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,166
Posts196,921
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5