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Joined: Nov 2014
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Joined: Nov 2014
Posts: 73
Liquid hope has no corn syrup in it. Medicare and insurance covers I found nation DME in Murfreesboro tn. It is only formula I could tolerate. It is gmo free and Taste good. My wife adds protein. I use lose it app which helps me keep track of nutrients.

You can thin it down, my wife feeds me via syring.

Last edited by larry6905; 04-25-2015 06:58 AM.

T4,N2,MO SCC of the BOT hpv+
Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015
PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015
Clear 4.9.2015 PET/CT H&N.
11mm low SUV nodule RUL on lung PET/CT
2nd PET 8.25.15 10+ numerous nodules bi later lungs
9.9.15 Lung biopsy SCC Org BOT
Avastin and Torisel clinical trial 11/15-3/16 MDA
Home 5/23/16 Pet scan 50% growth & +SUV
Opdivo 6/2016
Synthroid 100 mcr
Scan tumors shrinking
Teeth decay 9/2016
Joined: Dec 2014
Posts: 24
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Joined: Dec 2014
Posts: 24
I had to give up on the formulas from Nestle (IsoSource and Nutren) - I couldn't tolerate them (let's just say they raced their way through my system and left me depleted). I found the website for tubies and have used some of their information to create my own blenderized recipes. I don't use a pump, only gravity (no plunger). There are two keys that I have found that help: blending your mixture long enough (sometimes this takes more than a few minutes) and dilution with enough water. This is important not only with my home made recipes but also with the Liquid Hope (which I am a big fan of because of the nutrition it delivers) as it is very thick.

If your hubby has only lost 4 pounds then you are doing a great job getting nutrition into him! Keep on plugging away and trying new things. If he is still in treatment (I realize I am late to the dance here) you might want to blanch any raw foods you include in the blender versions to cut down on exposing his depleted immune system to anything that might linger after thorough washing).

Prayers your way,

Heather


11/2014 - DX SCC, S3N0M0
Non-smoker/drinker/drugs, no cancer of any kind in family, HPV negative
2/10/15 neck dissection, nodes removed (all clear), moderately differentiated mass removed from cheek & hinge of jaw, free flap graft. Clear margins. Micro infiltration into some of the vascular structures in the local area of tumor. PEG tube 1 week later
4/6/15 - Begin 40 Rads & 4 rounds Cisplatin
5/27/15 - rads & chemo complete.
12/5/15 - PET/CT clear. Watch & wait...
Joined: Oct 2006
Posts: 383
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Joined: Oct 2006
Posts: 383
Nutren was very hard on me as well. Been on Fiber Source 2.0 and handling it pretty well for about 5 months now. I began having some reflux issues and was cut back to 8 oz. per feeding, with more frequent feedings (Already on Omeprozole). It done the trick! So far so good. Going to search out the websites Gary and others mention. I have been able to up my oral intake some (After being told I probably wouldn't ever have a normal oral diet; Yeah, I'm stubborn that way), but I haven't attempted to blend anything on my own at this point. Plus, five minutes with a tube feed compared to a couple hours to even make a dent in a meal, well, yes, I can calculate the hours in ones day. Still, feeling blessed I'm getting some "Normal" satisfaction (With a ton of water-LOL). Best to all.


SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!

**** PASSED AWAY 10/8/16 ****

Joined: Jan 2015
Posts: 18
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Joined: Jan 2015
Posts: 18
I wanted to let everyone know that the surgeons finally agreed to a low profile MicKey button. I have had it for just over a month. To date I find it far superior to the MicKey with the long tube. The surgeon warned my wife after my throat dilation and the placing of the MicKey Button that he only did it because I insisted but that it would be "problems". This he said when he never had put one in before.
This little button is easy to use, does not get caught when I roll over in bed or play golf, seems more hygiene and guess what-I now swim with a waterproof patch.
If anyone is considering a MicKey low profile I highly recommend.


Johnnie
Stage 4 cancer survivor 2002
RND
IMRT
Chemo
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