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#181640 05-11-2014 06:40 PM
Joined: Apr 2014
Posts: 13
Tippie Offline OP
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So very anxious waiting for my TORS surgery. I was told that I could just have radiation but if I do the surgery I may not need as many. Anyone else have a similar situation. How is recovery from TORS? I have a small mass on BOT and 1 node stage 3 SCC.


SCC stage 3, BOT, 1 Node, DX 4/10/14
CT4/10/14
PET4/11/14-clear (except for 1 node)
FNA4/14/14,4/24/14
T1N2M0
TORS 5/23/14
HPV+
30 rads completed 8/22/14
NED 11/6/14 😀
Tippie #181641 05-12-2014 04:28 AM
Joined: Mar 2013
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Hi Tippe,

I had TORS to remove my lingual tonsils and take biopsies in an attempt to locate the primary. I had a neck dissection at the same time to remove the tumors from my neck. The logic was the same. If they could get the cancer, I would need less treatment. Maybe just rads and less of them. as it turned out, the tumors were extracapsular so I needed chemo but it was 30 rads and 6 chemos.

Recovery has been difficult but it's doable.

Positive thoughts and prayers


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
Joined: Apr 2014
Posts: 13
Tippie Offline OP
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Thank You for your reply. I am glad to read all your posts and get the real story. Be well..


SCC stage 3, BOT, 1 Node, DX 4/10/14
CT4/10/14
PET4/11/14-clear (except for 1 node)
FNA4/14/14,4/24/14
T1N2M0
TORS 5/23/14
HPV+
30 rads completed 8/22/14
NED 11/6/14 😀
Tippie #181644 05-12-2014 06:47 AM
Joined: Dec 2010
Posts: 5,260
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"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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To be honest I wouldn't be worried about lessening radiation. radiation totally sucks - it's not easy - even for the best case scenario with rads it is bad (not gonna lie) however, I'm a do what you can person - I would rather dig in and deal with it all now (hit it with everything you've got right out of the gate) rather than try and take it easy with the treatment and face a potential (highly likely - and possibly fatal) recurrence 1-2 years down the road.
The treatment is scary as crap - but I've seen it happen far too many times that the patient is ambivalent about the full course of treatment - drs. sense this btw - so the drs back off and don't follow through with what they really think should be done, and literally within a year or two they are chasing the cancer again.

To me if a surgery is recommended - that removes what should be the bulk or all of the cancer -it's worth it. That leaves the rads to do its job - as a clean up man. smile the surgery of the two treatments is the most recoverable wink try not to worry. Hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #181648 05-12-2014 08:41 AM
Joined: Apr 2014
Posts: 13
Tippie Offline OP
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Posts: 13
thank you!


SCC stage 3, BOT, 1 Node, DX 4/10/14
CT4/10/14
PET4/11/14-clear (except for 1 node)
FNA4/14/14,4/24/14
T1N2M0
TORS 5/23/14
HPV+
30 rads completed 8/22/14
NED 11/6/14 😀
Tippie #181661 05-12-2014 10:17 PM
Joined: Aug 2011
Posts: 269
ngk Offline
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Posts: 269
Hi Tippie!
I had TORS last July, definitely not pleasant but was up and about very soon after. Personally I was happy about the idea of cutting the tumor out. I also had radiation...no walk in the park, but I had a much easier time of it than most, and for that I am very thankful. Please feel free to PM me with any questions you might think of.


Nancy (53 at dx)
Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs
7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo.
5/29/13 - Found primary
7/3/13 - TORS
7/8/13 - Emergency Surgery/Blood vessel burst in throat
8/9/13 - Peg in
9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck
10/14/13 - Radiation ended!
11/12/13 - PEG out!

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