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#179809 05-04-2014 12:54 AM
Joined: Aug 2011
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Kerri Offline OP
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Has anyone acquired strep throat after having throat cancer?

I had bilateral tonsillectomies with positive cancer on the left in August of 2012.

I had a cold, which come along with a sore throat, but now the cold is better (almost gone) and my throat has gotten worse.

I just looked in the mirror and I can see white patches in the back of my left side. This is the same side as my cancer. I'm starting to freak out a bit.

Should I contact my doctors on Monday?

~Kerri


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Kerri #179812 05-04-2014 03:08 AM
Joined: Oct 2013
Posts: 559
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You probably should see your doctor as it looks like an infection. However, at this point I wouldn't assume it's strep. I've had multiple bouts with throat issues that looked like infection both during and after treatment (which ended 5 months ago).

They have cultured it (and nothing grew) showing it's not bacterial (ie it's viral). They have said the viral just has to run it's course as there isn't a lot available to treat viral infections with. In all instances, give it a week to ten days and it's been gone (for me).

I have also been told that at the surgery site (I only had one tonsil removed) you can expect white puffies that look like infection for awhile. Your's being two years ago worries me a little more than mine (5 months) does, another reason to discuss with the doc.

I hope this helps
Tony



Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

Kerri #179821 05-04-2014 05:41 AM
Joined: Dec 2003
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Kerri,

With the immune system roller coaster ride for a while after treatment, you need to get it checked by a doctor. One if the dangers if strep is the body's natural immune response creates antibodies that cause things like RA, scarlet fever, rheumatic fever. They all are permanent lifelong problems. Identification of strep is important and maybe one of the easiest things to treat.

When in doubt, consult with a doctor. You are reaching the point of looking for a family physician if you don't have one. Many don't like to deal with after effects of treatment but at some point, oncologists don't manage the day to day.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Kerri #179823 05-04-2014 05:55 AM
Joined: Jul 2012
Posts: 3,267
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See your doctor on Monday. It can be a number of oral conditions or infections, which can be bacterial, fungal or viral origin, and would need proper medications to treat. Strep throat can be bacterial, but there are viral ones too, and white patches in the mouth can be thrush, a fungal infection, or combination of infections, and in the throat thrush is esphogitis, can go to the stomach, become systemic from there into the bloodline, which is then invasive or dissemintared candiasis, which has a high rate of failure, the same with strep throat, can go to the lungs, become systemic too, and be more difficult to treat.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Kerri #179831 05-04-2014 11:11 AM
Joined: Aug 2011
Posts: 596
Kerri Offline OP
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hey everybody,
I hate that the stuff always seems to happen over the weekend. I just went to the local urgent care center in my rapid strep came back negative. They're sending it out for a routine throat culture.

I am having a bit of a freak out. They're going to put me on augmentin. I saw a PA, and she said that I had someone millimeter ulcers in my throat and I have an ulcer on my tongue right in the middle.

I sent a message to my med once fellow, as I have her email.

I hope it's nothing serious.


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Kerri #179833 05-04-2014 11:43 AM
Joined: Jul 2012
Posts: 3,267
Likes: 1
Patient Advocate (old timer, 2000 posts)
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Mucocitis causes ulcers too, as well as other oral conditions, some quite common with treatment, but you're doing the right thing by keeping on top of it, visiting urgent care, and letting your treatment team know. You had me laughing, not thats its it's funny, but ironic, everything seems to happen at night and on weekends! That's why I keep an arsenal of meds ready lol. Good question everyone should ask the treatment center, who do I contact off hours? I had a list of numbers for chemo, but not always or everywhere I was treated. If in doubt, there is always the ER.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Kerri #179834 05-04-2014 11:48 AM
Joined: Aug 2011
Posts: 596
Kerri Offline OP
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Thanks, Paul. I'm so sorry that you've had so much trouble, after reading your signature. I'd call the on-call at the cancer center, but I'm sure there's not much they could do until they see me. The one who is on-call doesn't know me.


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Kerri #179865 05-04-2014 06:38 PM
Joined: Nov 2013
Posts: 104
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Joined: Nov 2013
Posts: 104
If you have dry mouth, I'm guessing oral thrush(candidiasis)... I just went thru this, looked like I had cottage cheese growing in my throat, onset was almost overnight,4


Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
Kerri #179876 05-04-2014 07:11 PM
Joined: Aug 2011
Posts: 596
Kerri Offline OP
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Brian,

I do have dry mouth, despite constantly drinking water.

It has worsened today and aside from the ulcers, my tongue does seem to be turning a bit white. The pain is nearly or just as bad as when I was in treatment. I'm taking methadone, oxycodone, and motrin and it still makes me wince every time I swallow.

I will be calling the cancer center first thing in the morning.


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!
Kerri #179885 05-05-2014 05:00 AM
Joined: Jun 2007
Posts: 10,507
Likes: 7
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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The white makes me think its thrush. That can be very painful. Get yourself checked out today and start on some meds. Feel better!



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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