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| | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | The OCF walks are a great way to connect with other survivors. Don't worry about actually doing the walk. We've had many survivors and others attend, but physically were not able to walk so they just hung out at the pavilion.
The walks will have speakers, food and entertainment! They also offer free oral cancer screenings, so invite your friends and family to attend also.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | Look up SPOHNC on the internet, they have a list of all local chapters. We even have one here in my home town that meets twice a month. I've been to several meetings, but the support I get here on OCF is way better. Tony [/quote] I attached the SPOHNC local chapter link in my first post. http://www.spohnc.org/local_chapters.php
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Oct 2005 Posts: 47 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Oct 2005 Posts: 47 | Thanks everyone! I will check it out. 
scc 4/2004 r side tongue, flr of mouth.
neck disection,4 lymph nodes 34x rad,3X chemo
10/2007 r cheek. remove w/graft. 40 HBO dives.
01/2010 r cheek. surgery w/graft
04/2010,surgery remove lower right jaw, reconstruct. 4x chemo 25x rad. clear margins. pet 8/2010 clear
July 2012 right side bot cancer. surgery to remove, clear margins
4/2013 Surgery to remove cancer in lymph node near thyroid, clear margins
6/2013 start of rad 25X Chemo 7X
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