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#179557 04-23-2014 10:33 AM
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I am 4 weeks out from my latest biopsy/dissection and the tip of my tongue feels like it is scalded. This gets worse as the day progresses. This was my 13th surgery and the first time I have experienced these sensations. I have not had any chemo or radiation so these are not the cause. There seems to be no reason for it, this surgery was not any different from any of the others so the symptoms are confusing.

Has anyone else experienced this? What helped? Did it pass?

I would appreciate any input you may have.


Squamous cell, tongue
First biopsy 2006, Stage 1 2008, 2010, 2012, 2013
To date: 13 surgeries & 3 nonsurgical biopsies
Joined: Apr 2013
Posts: 319
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Given the circumstances you describe, it looks to me like you have some nerve damage in your tongue, likely from one or more of the 10 surgeries (!) you've had. I have some non-cancer related experience with that in my right leg due to a couple of gun-shot wounds, one of which went squarely through the sciatic nerve.

This is a different problem than regular neuropathy, you need to talk with a neurologist about it, IMHO.


My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!
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Sorry to hear of your troubles. I don't know the extent or location of your surgery, but would think it may have a role in your current tongue sensitivity, escpecially after 13, in addition too, any anethesia given, pain meds. Some medications can cause tongue swelling, taste changes, and sensitivity, as well as medical conditions like dehydration, kidney impairment, thrush, which I mention since they happen to me. You may want to stay way from acidic, hot, spicy and sharp textured foods as not to irritate the mouth, use soft or baby tooth brushes, and check for any sharp teeth that may be cutting into the tongue or biting at night. Any symptom not resolving over time should be brought to the attention of your doctors.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
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04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Sorry to hear you are having a problem. Its possible nerves were damaged with the surgery. Neuronton is a prescription pain medicine that works for nerve damage. I suggest checking in with your doc about the problem and ask about the medicine while you are there. Maybe it will help. Hopefully in time you will move past this painful point.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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I'm going to agree with everyone here and take it a step further. Since you have a history of tongue cancer and treatment (surgical) I would push the dr. to take a look at the area and keep a close eye on it yourself. as you know this cancer can skip around - and lack of a sore or white area doesn't always mean there's no cancer. Hugs and here's hoping it stops hurting.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan

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