| | Joined: Apr 2014 Posts: 1 Member | OP  Member
Joined: Apr 2014 Posts: 1 | Has anyone heard about any new treatment options for tongue cancer. I just finished my radiation for the scc of the tonsil and was told I may have developed a tumor in my tongue during the radiation and treatment of the tonsil.
Has anyone heard of that happening?
Thanks | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | The only ways to completely eliminate SCC is thru surgery and/or radiation with or without chemo.
I have not seen another member have a tumor in the same general area grow while undergoing rads.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | The next step for this would be surgery to remove the tumor. I would see your ENT ASAP.
Hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | I forgot to mention earlier... its possible this could be scar tissue. Hope thats all it is.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | A recurrence can occurr anytime, can even be synchronous or metachrounous cancer too, but the average recurrence for oropharyngeal cancer is around 7.8 months, and is rare that it occurs so soon after treatment, but can, and that may influence outcome. Only a biopsy can prove it's cancer or not, and doesn't sound like it was done being you mention, "I may have developed..." Immunotherapy, which also covers monoclonal antibodies, like Erbitux, others, is not used as a sole treatment for curative purposes, that I know of, only palliative, but is in conjunction with surgery or radiation. The first line of treatment for a recurrence is usually surgery, plus radiation, and chemo/targeted therapy depending on other factors, and intent. There are other immunotherapies being investigated with HPV head and neck cancer, assuming yours is? Here is one trial with imminue therapy for HPV being done with Transoral Robotic Surgery, TORS, at Mt. Sinai Hospital in NYC just to answer your question. http://sciencebusiness.technewslit.com/?p=16577Good luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Oct 2012 Posts: 41 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2012 Posts: 41 | my husband tried Erbitux and had a very severe reaction and could not have it. I'm told the reaction is rare. we were also advised its palliative only
Caregiver to husband 53 SCC stage 3 soft palate 2011 Rad, recurrence tongue stage 4 2012 induction chemo, partial glossectomy surgery, cancer back left rad neck dissection 2013, more chemo, allergic to erbitux, cancer back 2014 floor of mouth and jaw, mandibulectomy scheduled 3/5/2014
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