 Contributing Member (25+ posts)
Joined: Mar 2014 Posts: 31 | If I could add anything of value to Cheryld's wonderfully informative post I would just reiterate her advice to start treating the skin on day one of rads. There is no green light or red flag that will tell you when to start so start on day one of the rads. Unfortunately, I didn't understand that when I started rads so I have some uncomfortable burns that I might have been able to mitigate or avoid. Start your care routine on day one and you won't have to be adjusting in the middle of your treatments.
2/2014 SCC T4aN2bM0 HPV+ Tonsil/BOT
3/3/2014 PEG and port
3/10/2014 Chemoradiation therapy begins 260 mg Cisplatin x3, 2.12 Gy rads x33
4/23/2014 Final Cisplatin infusion
4/25/2014 Final radiation treatment
7/17/2014 PET scan. Lymph nodes clear. Primary tumor reduced both size and SUV (borderline hypermetabolic) so it's inconclusive.
8/2/2014 PEG tube removed.
11/24/2014 Saw MO, RO, ENT, and Head & Neck Surg. over past 10 days - all agree no recurrence but enhanced surveillance will continue.
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