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#178796 03-29-2014 07:29 AM
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Karalee Offline OP
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My IMRT ended on 3/25/14. My neck and right cheek were bright red on the last day. Now they are getting weepy spots and blisters. Any suggestions to make them heal faster?


Karalee
10/18/13 SCC Stage IV, T4aN2bM0, right cheek, sinus cavity, upper jaw bone, 1 lymph node, HPV Neg, Non Smoker, Age 62
11/18/13 Surgery - composite resection right retromolar trigone and right selective neck dissection plus reconstruction, margin <0.1 cm
11/20/13 Emergency surgery for ecchymosis of flap
2/12/14 Start IMRT, 30 treatments ended 3/25/14
Karalee #178802 03-29-2014 09:28 AM
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Domeboro soak. Comes in a powder form. You soak gauze with some powder in water and place them on the blistered areas. Heals quickly.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Karalee #178815 03-29-2014 03:44 PM
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Posts: 7
Karalee Offline OP
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Domeboro worked great! Thanks for your help.


Karalee
10/18/13 SCC Stage IV, T4aN2bM0, right cheek, sinus cavity, upper jaw bone, 1 lymph node, HPV Neg, Non Smoker, Age 62
11/18/13 Surgery - composite resection right retromolar trigone and right selective neck dissection plus reconstruction, margin <0.1 cm
11/20/13 Emergency surgery for ecchymosis of flap
2/12/14 Start IMRT, 30 treatments ended 3/25/14
Karalee #178828 03-29-2014 09:54 PM
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Posts: 2,606
Likes: 2
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Great news! I'm glad you got some relief.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Karalee #178834 03-30-2014 05:14 AM
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Posts: 559
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It won't help to know this now, but did you use Aquaphor during radiation treatment?

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

Karalee #178878 04-01-2014 03:07 AM
Joined: Jan 2014
Posts: 7
Karalee Offline OP
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Posts: 7
I tried Aquaphor for a while and then switched to Curel Intensive Healing which seemed to work better.


Karalee
10/18/13 SCC Stage IV, T4aN2bM0, right cheek, sinus cavity, upper jaw bone, 1 lymph node, HPV Neg, Non Smoker, Age 62
11/18/13 Surgery - composite resection right retromolar trigone and right selective neck dissection plus reconstruction, margin <0.1 cm
11/20/13 Emergency surgery for ecchymosis of flap
2/12/14 Start IMRT, 30 treatments ended 3/25/14
Karalee #178885 04-01-2014 05:30 AM
Joined: Jul 2012
Posts: 3,267
Likes: 1
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I used Aquaphor, and then cetaphil, which I found less greasy. I never needed anything further than this.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Karalee #178939 04-02-2014 10:37 AM
Joined: Jul 2009
Posts: 1,406
Patient Advocate (1000+ posts)
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For me the best was silver sulfadiazine. Thick white goop but it did the trick.

Congrats on getting through it!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
Karalee #179005 04-05-2014 05:24 AM
Joined: Mar 2014
Posts: 31
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During treatment (18 rads down, 15 to go) I'm using a cream called Alra. It contains aloe gel, soluble collagen, vitamin E, lanolin and allantoin. It's expensive, (I paid $12 for a 4 fluid ounce bottle) but it gives good relief. I'm going to look into the Domeboro as well. Thanks for the tip.

Karalee - hang in there and good luck! Thanks for bringing this topic up - I learned something that may well help me out and I greatly appreciate it.

Liam



2/2014 SCC T4aN2bM0 HPV+ Tonsil/BOT
3/3/2014 PEG and port
3/10/2014 Chemoradiation therapy begins 260 mg Cisplatin x3, 2.12 Gy rads x33
4/23/2014 Final Cisplatin infusion
4/25/2014 Final radiation treatment
7/17/2014 PET scan. Lymph nodes clear. Primary tumor reduced both size and SUV (borderline hypermetabolic) so it's inconclusive.
8/2/2014 PEG tube removed.
11/24/2014 Saw MO, RO, ENT, and Head & Neck Surg. over past 10 days - all agree no recurrence but enhanced surveillance will continue.
Karalee #179020 04-05-2014 10:18 AM
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Posts: 10,507
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Administrator, Director of Patient Support Services
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When using the creams and ointments, never put them on right before you go for treatment. It can interfere with rads.

When applying the cream, always pat it on gently. Never rub it in. Allow the cream to soak in. When the skin has open oozing sores, lightly pat the cream on and place a nonstick gauze pad on top to help the wound stay clean. Never let the shower run full stream on open, oozing sores but its ok to slowly pour warm water over the area.

Hang in there!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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