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#178823 03-29-2014 06:36 PM
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OzMojo Offline OP
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Hi all

I start my Cisplatin tomorrow. I have resigned to the fact that it is going to be a bad couple of days but I'll survive.

What should I have for breakfast? I expect I'll struggle with nausea and eating etc, but whats best to start the day with? Big feed of bacon and eggs? Tons of cereal and fruit? Or go easy so it doesn't all come back up?


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
OzMojo #178825 03-29-2014 08:41 PM
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Dave, I would eat normally. They give you some IV anti nausea meds before your cisplatin dose. I usually ate fine during the actual dosing, they served lunch at my treatment center, and when I could no longer eat I was able to use my gravity feed formula on treatment day no problem. The worst for me was the second and third nights post chemo.

I was getting weekly doses, the first week was miserable and it wasn't that I had to vomit, it was like a very low grade seasickness... Just enough woozy/uncomfortable that you didn't want to eat anything and sleeping was difficult. I complained to the nursing staff and on the second week they used a bunch of anti nausea meds that worked well. I still was not 100% but it was tolerable.

You can read my blog in currently under treatment if you want to know the medication they had me on. Can't remember it now. Everyone reacts differently so go in with a good attitude you might be one of the lucky ones.

Last edited by BrianPK; 03-29-2014 08:44 PM.

Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
OzMojo #178827 03-29-2014 09:33 PM
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Hi Dave, Kris had a regime for anti nausea meds given to us before he started the Cisplatin. He took some prior to the first dose.
His meds were; Domperidone ( Mitilium ). 10 mgs 4 times /day

Ondansetron. ( Zofran ). 8 mgs. 3 times /day

Dexamethasone. 8 mgs. 2 times /day

Aprepitant. 80 mgs Once / day

He started this regime on the morning of the first dose.

I'm sure that the chemo Nurses will give you anti nausea meds. Please also ensure that you are given a script so that you have these meds to take routinely at home - at least for the 3 days following the Cisplatin.

You will get through this.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
OzMojo #178835 03-30-2014 05:33 AM
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This is from Cleveland Clinic, "I have cancer. What should I eat during cancer treatment?" The other is from NCI, National Cancer Institute, "What Should I eat before, during and after Cancer Treatment." These are in general, not just geared for Head and Neck Cancer Patients. Chemo effects start to be felt a few days after infusion, unlike radiation, which usually you start feeling 10-14 days after starting. Generally you want to stay away from foods that are Spicy, Acidic, sharp textured, not too hot tempersture wise as not to cause irritation to the mouth, which will worsen mucocitis, which is bound to happen, thrush, other infections. Strong smelling foods can also cause nausea, food aversions. I couldn't eat garlic during treatment, and could smell it a mile away, even on people's breath. The same with certain textures like bread, potatoes I couldn't eat for a year..it was a texture thing. You may want to eat a bland diet, sometimes not your favorite foods since your taste will be off, and may dislike them in the future if you do eat them during treatment. You definitely want to avoid unsafe foods, unsafe cooking practices, food handling, storage, and I limited my eating out to avoid sickness while my immune system is down. Water is also important to flush the cisplatin from the kidneys. Everyone is different in what they can taste or may dislike. It was trial and error for me.

http://health.clevelandclinic.org/2...l-_-social-_-140329+cancer+treatment+eat

http://www.cancer.gov/cancertopics/coping/eatinghints/page1/AllPages

http://www.cancer.gov/cancertopics/pdq/supportivecare/nutrition/Patient

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






OzMojo #178848 03-30-2014 03:43 PM
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Best wishes for your treatment Dave and hoping you sail through it.
Looks like you are getting great advise here.
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

OzMojo #178856 03-31-2014 01:53 AM
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Thanks everyone. They hydrated me for a couple of hours, put in some anti-nausea stuff in the mix, and it went ok. Was drinking water and peeing all afternoon but didn't feel too bad. I started to feel a bit seasick in the afternoon but I nipped that in the bud with Metoclopramide as instructed and I have Ondansetron and Dexamethasone as well. I'm aware it could be worse tomorrow, but I understand the importance of keeping on top of my meds.

Had the first radiation treatment today, which had me under the mask longer than normal while they set it all up. But I had my wife holding my hand through that so it was ok. Only 34 to go! Thanks everyone for the well wishes.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
OzMojo #179153 04-09-2014 01:01 AM
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No two cases are the same I know, but I wasn't ready for the nausea. Not 8 solid days of it. I kept hydrated and kept on top of the meds, only vomited a couple of times. Constipation didn't help either. Today is the first day I've been able to eat without meds, which is a huge victory. Now to build up the strength again before the second hit in week 4. I'll be more mentally ready for it this time.


Cheers, Dave (OzMojo)
19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil.
31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014)
11August2014 PET/CT clear.
17July2019 5 years NED.
OzMojo #179162 04-09-2014 07:15 AM
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Hey there... everyone is different as you said. I found cisplatin only mildly annoying. Did they give you a med for breakthrough nausea? If not request one. Some people have a tough time with it. I really wasn't bothered by it. I had the three bag method but they kept me in overnight and ran an IV. Hugs,



Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
OzMojo #179166 04-09-2014 08:18 AM
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Other than dinging my hearing pretty good, I had very few issues. Actually went on a training run after my first (of three) infusions. I never claimed to be smart...


Dx March 2011 via FNA (49 yrs old)
SCC BoT
HPV+ exact strain unknown
Stage IVa T3N2cM0
Cisplatin x 3, IMRT x 40 (7267 cGy)
One node removed post-treatment (rad dmg)
Clean PET 10/28/11
Swallow therapy
OzMojo #179167 04-09-2014 08:26 AM
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Actually its good to move... even if you are feeling crappy... I used to walk my dog daily - twice... even if I was dragging my butt... ;o)


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
OzMojo #179500 04-20-2014 06:00 PM
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I think the best advice I got was to drink lots and lots of water and have a bowl of ice cream each night before bed.

The water for the kidneys and the ice cream for the calories. Besides ice cream has significant, but difficult to quantify medicinal benefits.


Oropharyngeal Cancer, SCC, HPV 16+, stage IV T1N2b age 45
Started in my tonsils and spread to my lymph nodes
Cisplatin x3 with concurrent daily radiation treatments started 10/22/13 finished 12/6/2013
OzMojo #179520 04-21-2014 08:29 AM
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Definitely on the water.. My hospital was super cautious with cisplatin, they kept us in for the night on a full IV to flush the kidneys, hugs


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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