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fishmanpa #178602 03-23-2014 08:25 AM
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"OCF Canuck"
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"OCF Canuck"
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Can you say reaction to something??? Yikes!!! smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Cheryld #178639 03-24-2014 06:26 PM
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Despite the fact that the swollen node on my neck had gone down considerably and the very unusual way this all started, my ENT is very concerned. He had a CT with contrast done stat while we were there but was unable to arrange a FNAB of the node. He has no idea why it swelled as rapidly as it did or the reason behind the intense itching (which is finally easing).

The CT showed "thickening" and "tissue inflammation" but he thinks it could be due to whatever it was that hit me. The node itself didn't present as very concerning. This was based on what he saw but it has to be reviewed by the CT specialists. I have to go back to Baltimore for the biopsy. Contrary to the standard mantra he said "In a situation like yours we assume it's cancer until we can prove otherwise". I appreciate their concern and thoroughness but I'm a bit in freak out mode right now frown

So I'll know in a day or so when I'm heading back down to Baltimore and until then, it's a waiting game.

Positive thoughts and prayers.

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
fishmanpa #178645 03-24-2014 07:20 PM
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"OCF Canuck"
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"OCF Canuck"
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I am honestly thinking you've had a reaction to something. I know their concerned but It sound like your node was very unhappy with something you dealt with... Food you ate or and item came into contact with. Hugs and fingers crossed.

Last edited by Cheryld; 03-24-2014 07:22 PM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
fishmanpa #178662 03-25-2014 06:03 AM
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
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Have you had the arthritis panel as part of your bloodwork to rule out RA / Lupus?
Maria (I have RA; possibly a touch of lupus)


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Maria #178723 03-26-2014 01:39 PM
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UPDATE:

I spoke to my ENT's office and they said I should see my GP and call back (which I did today).

She has no idea what caused the node to swell and the itching etc. No one seems to know but this whole thing seems to be systemic as it's now progressed to my chest. I'm a little hoarse and my ears itch. Their best guess is "something viral". I was given an antibiotic to take anyway.

I discussed the "scanxiety" with my GP and she's not surprised at all that I have a bit. The med she gave me is one I can take whenever I feel I need it so I can start a week or so prior to check ups and go off afterwards. There are no side effects associated with it as it's not an SSRI and mild by med standards.

The good news is that the CT scan was "unremarkable" and my ENT said not to get the biopsy and to see him again in May. If the node persists or grows larger contact him but for all intents and purposes, I'm Ok for now.

Can you say ~WHEW~?

Positive thoughts

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since
fishmanpa #178725 03-26-2014 01:48 PM
Joined: Jan 2013
Posts: 1,291
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YEAH!!!
for the report and also getting something to keep around to beat down when the mind starts spinning and smokin a bit too much.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
fishmanpa #178734 03-26-2014 05:53 PM
Joined: Jun 2013
Posts: 262
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Posts: 262
T, I can say Whew, and Hallelujah! I'm so glad that you bored your ENT this week smile. And I really like the way you're stepping off the scan-coaster. I think I need to follow your lead and will be talking to my docs about a short-cycle med. That idea just never occured to me. Thanks for sharing the info!

(((HUGS)))

Lynn


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
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