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#178487 03-19-2014 11:31 AM
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johnh Offline OP
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New here... Although I did read the OCF site during my treatment for S4. Standard chemo/rad treatment last fall - you all know the drill. Wow what a journey. Curently C-free.

Doesnt seem to be that many out there that is why i felt compelled to join. Whomever may read this.... may you be a survivor.

johnh #178488 03-19-2014 12:02 PM
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There are quite a few of us here... welcome and hope you're doing great.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
johnh #178501 03-19-2014 04:02 PM
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Posts: 319
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Oh poop! I'll have to save this deathless prose for tomorrow...

Last edited by Bart; 03-19-2014 04:04 PM. Reason: misc.

My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!
johnh #178509 03-19-2014 07:47 PM
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John, welcome to the family and glad you got through it. We look forward to hearing more from you.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
johnh #178511 03-19-2014 09:28 PM
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Administrator, Director of Patient Support Services
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John, welcome to OCF.

There are many survivors! This forum has thousands of members from around the world.

Best wishes to you with your recovery.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
johnh #178512 03-19-2014 09:34 PM
Joined: Aug 2013
Posts: 54
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Posts: 54
Hello John. I too am a survivor from this fall. I am here reading daily....but only post when I feel I have something useful to say. Glad to welcome you to the family. 😄😄


48 yo female, quit smoking 4yrs ago, light drinker, Stage 2 SCC, Bx3, Dx 8/22/13, surgery 9/11/13. Partial glossectomy, bilateral neck dissection levels 1-4. Tongue reconstruction with flap from forearm. 87 Lymph nodes CLEAR. Tongue margins good at 1 cm. No further treatment planned. Monthly monitoring planned for upcoming year then periodic monitoring for next 4
johnh #178515 03-19-2014 10:40 PM
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Hi John,
BOO!
Glad you felt compelled to join, the more the merrier. Post a note now and then in response to someone needing a bit of encouragement or a tip you picked up along the way.


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
johnh #178519 03-20-2014 06:08 AM
Joined: Jul 2012
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Welcome John, every cancer patient here is a head and neck cancer survivor or caregiver, some say fighter. Whatever you choose. In some cancer centers you may not run into many head and neck cancer patients as you would other cancers, or know who they are, if that's what you were referring too, as not finding many out there. I didn't meet, know of any head and neck cancer patients, especially tonsil, until a year after my initial treatment when I joined another blog on-line, and after three years in real life when I attended a SPOHNC chapter meeting, about the same time I joined here in 2012.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






johnh #178530 03-20-2014 09:48 AM
Joined: Mar 2014
Posts: 3
johnh Offline OP
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Well I want to that all of you for your kind words... First time ever navigated a blog. In my inital post I was refering to the head and neck patients - - although I met many other C patiets at the cancer center. It is so difficult - the anxiety we (or at least me)go through from time to time even after the all clear is given.

Again thanks...



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