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| | Joined: May 2013 Posts: 185 Likes: 3 Senior Member (100+ posts) |  Senior Member (100+ posts)
Joined: May 2013 Posts: 185 Likes: 3 | Glad to read you are feeling a little bit better today. The weakness is normal for most people so don't get discouraged by this. Nutrition and hydration are number one and two and affect your body by assisting in repair. Protein shakes like Bart mentioned are great ways to supplement. I used Jevity in the tube several times a day and always closed out the day with any shake. The ice cream was cooling and soothing to a radiated throat. Keep up your spirits and put on your warrior face. We will coach and try to encourage you on your journey.
Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Keep the water coming too. That acid indigestion feeling is exactly that. Toxic acid coursing through your systems. Keep it flushing out and it isn't as bad. Not eating turns the acid uglier.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Apr 2014 Posts: 20 Member | | Member
Joined: Apr 2014 Posts: 20 | That was amazing post Bart, thank you. That has been my thoughts this past week, off and on of course.
Kimberly
KimberlyAnn first diagnosed 3/31/2014
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