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#178119 03-10-2014 01:30 PM
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gmcraft Offline OP
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I like the new look of the website although initially I was a bit disoriented trying to find the Forum.


Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
gmcraft #178122 03-10-2014 02:34 PM
Joined: Mar 2002
Posts: 34
Contributing Member (25+ posts)
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Joined: Mar 2002
Posts: 34
Thanks for the comments on the new website. We added a link on the top of every page to login to the support forum.
[img:center]http://oralcancer.org/forum/images/1.jpg[/img]

Last edited by Webmaster; 03-10-2014 02:35 PM.
gmcraft #178132 03-10-2014 05:11 PM
Joined: Nov 2009
Posts: 493
Platinum Member (300+ posts)
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Posts: 493
Love it!


Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive
surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
gmcraft #178161 03-11-2014 05:09 AM
Joined: Oct 2013
Posts: 559
Likes: 1
"Above & Beyond" Member (500+ posts)
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Joined: Oct 2013
Posts: 559
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I particularly like the link to the Youtube OC videos, lots of other good additions too.

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

gmcraft #178697 03-25-2014 10:31 PM
Joined: Jan 2006
Posts: 756
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"Above & Beyond" Member (500+ posts)
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Joined: Jan 2006
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Love the new look of the OCF website!

Question - is there a SEARCH function to search the OCF main web pages? There was one before, but I could not find it on the redesigned website.

Thanks!


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
gmcraft #178698 03-25-2014 11:39 PM
Joined: Mar 2002
Posts: 34
Contributing Member (25+ posts)
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Joined: Mar 2002
Posts: 34
Google indexing is complete so the button is on every page at the top. Thanks!

gmcraft #178703 03-26-2014 04:55 AM
Joined: Sep 2009
Posts: 701
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"Above & Beyond" Member (500+ posts)
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Joined: Sep 2009
Posts: 701
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Nice job on the redesign! Fresh, clean, organized, stylish! Well done.


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
gmcraft #178727 03-26-2014 04:09 PM
Joined: Aug 2007
Posts: 1,301
"OCF Down Under"
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Aug 2007
Posts: 1,301
Loving the new look too.
See Webmaster has an Avatar and miss mine but know the reasons why we cannot go back to them smirk
Congratulations to all involved!
Gabriele


History Leukoplakia bx 8/2006 SCC floor mouth T3N0M0- Verrucous Carcinoma.
14 hour 0p SCC-Right ND/excision/marginal mandibulectomy 9/2006, 4 teeth removed, flap from wrist, trach-ng 6 days- no chemo/rad.
6 ops and debulking (flap/tongue join) + bx's 2006-2012.
bx Jan 2012 Hyperkeratosis-Epithelial Dysplasia
24cm GIST tumour removed 8/2013. Indefinite Oral Chemo.

1/31/16 passed away peacefully surrounded by family

gmcraft #178731 03-26-2014 05:43 PM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
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OCF Founder
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Posts: 4,912
Likes: 52
OK Gabe�. what are you seeing that I can't? The webmaster posts don't have an avatar. Perhaps I am existing in an alternate reality and didn't know it. Of course that would explain many things besides the missing avatar�


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
gmcraft #178733 03-26-2014 05:49 PM
Joined: Sep 2009
Posts: 701
Likes: 1
"Above & Beyond" Member (500+ posts)
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Posts: 701
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Brian,

On the post above mine, the webmaster has a photo. (You crack me up!)


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections
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