| | Joined: Nov 2013 Posts: 37 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Nov 2013 Posts: 37 | Last radiation treatment is in one hour! I did participate in the 4mile Westport run last week albeit I only jogged a mile of it and I wasn't worn out when I finished. The mouth sores are still waging war and trying to get the best of me. I have figured that if I snack a few times during the day it actually helps exercise the mouth and keeps the pain in check. Yesterday was doctor day. My weight is the same as it was on day 1. I am backing off the gas pedal a little bit on the calories. I still have around 15lbs I could give. I am anticipating I'll lose another 5lbs by the time this is done. The feeling on the left side of my face is slowing returning. Overall, I am in good health and still have my attitude! I am anticipating another couple of rough weeks. I haven't missed a day of work but the hours are not true tax season hours. I'm averaging around 40 a week. I'll post updates once a week in the after treatment section and close this.
SCC front left lateral tongue T2N0M0 After neck dissection. partial glossectomy 12/26/13. Perinueral Invasion. IMRT 60gy 30 treatments beginning 2/5/14 through 3/19/14.
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | You sure do have an attitude Mr. Fish! Congratulations! Hard to believe that parts over. You did a mighty fine job.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Fish,
You are doing amazingly well. Having lost not a single pound by end of rads - I would not count on losing the spare 15 at this point. You may very well just level out then improve on where you are now. Hang in there!
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Yeah... fish... !!!! Woot.... two more weeks of HELL (post treatment) then hopefully you'll begin to make your way back to normal... ish. hugs!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2011 Posts: 30 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Oct 2011 Posts: 30 | Tony, do you recall why you did not get chemo?
DX in 12/2010. Stage 4 SCC HPV+ BOT swollen lymph. I've spent the past 3 years away from medical treatments. Instead I've focused on good nutrition, active exercise, singing, laughing, oral exercises and such. I've had neither pain nor discomfort. But I haven't been able to kill the cancer. So, I'm now considering robotic surgery and/or radiation.
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