| | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 |
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Ankur - it looks like your surgery and recovery went great; very few side effects, the pain was minimal or well handled via medication and healing occured quickly. That's all wonderful to hear because for so many they don't heal quickly like you did; they have significant side effects.
But, maybe the best thing of all is you have obviously maintained a really positive attitude through the surgery and recovery. That is very noticeable in your writing and it will help others who come after you to maintain a positive attitude also.
Keep that wonderful attitude up, it will help you get through radiation just like it helped you get through surgery. I had very few side effects from radiation treatment, maybe you will be luckly like that too.
Keep writing about what is going on with you.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | Tony,
Very Good Morning!
It's 7:00AM EST here and slow is allover here in Philly.
First of all, thank you so much for precise attention to my recovery and replies to my posts. I feel too fortunate to be here. Honestly, I maintain strict protocol of self motivation and rock steady attitude/approach to treat this guest "C".
Luckily I have multiple mentors here who encouraged me to get through this flawlessly. I saw your reply to Fish, kindly for your info, we are in touch over FB and sharing experiences. We enjoyed video chat and gained confidence a lot. He is running a month ahead of my treatment, so its truly easier to follow pattern and his experience footprint. I am so glad to have such an extraordinary leverage in this high tech age. All blessed and thanks to god for enormous moral an spiritual power.
Definitely, I will posted here all developments. BTW, 24 Feb I am going to see RO first time to discuss second phase treatment blue print. After that I'll bring more updates.
One question I have is, my dentist examined my tooth and said everything looks great and you are good to go for Rads. But he denied to make FL treys saying it's hard to take impression of your jaws since mouth is not fully opened. SO he gave me disposable treys for a month, use and throw kind of thing. My question is,
Do I need a custom fit treys during the treatment? Is it
Is it mandatory / must to have treys right before Rads?
Thanks
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
