| | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | First of all,
BIG Thank you to all members for your support while I was on board.
Here are updates on my planned surgery.
Surgery went really well as expected, like I said.
Team removed the mass, did a flap reconstruction and performed neck dissection on right side only. 10 hours in total.
Healing - was relatively faster
Started- written communication in 12 hours after surgery.
Started - using iPad on a third day of surgery.
Pains- we're in full control through meds.
Swelling -was going away consistently every single day except tongue.
Stay in hospital - I was discharged on a fifth day after surgery. But was sent to nursing facility to monitor under controlled environment, I am still here. Another full week, before I go home. I personally decided not to go home until all attachments are removed. Follow the flow, get things done and then go home with no stress of attachments.
Mouth sours - are there but getting better with magic mouth wash and constant oral hygiene using salt water and zero alcohol mouth wash. I am trying everything one by one during the day time to feel fresh breath and confident feeling.
Came to nursing facility on a fifth day of surgery and today I completed fifth day here as well. a quick look at here.
Saw a team of care takers including OT, PT, swallow and speech therapist, recreational SW and many more amazing professionals behind me to restore and regain all my functions.
Swallow- started with little piece of ice, let it melt and swallow. Over all progress, one piece of ice on a first day to 20 pieces on a fifth day.
Speech- started with one little sound. On a fifth day, I can say about 10 words based on training.
I am still on a feeding tube as of writing this. Which is an up coming end to this.
Today 1/28, pain and swelling on tongue are almost zero. I have my first day after surgery, I can breath through mouth and nose. I tried different things, it worked.
Trech, feeding tube through nose and drains were attached due to reconstruction and will be removed after first post surgery visit to ENT and a plastic surgeon, which I am going to see on 1/30.
Last but not least, clock at work will resume ticking starting Monday. I don't have to go to office, but functional to play around on a laptop for 8 hours keeping myself busy until next round of treatment.
Last edited by neversmoke; 01-28-2014 11:15 PM.
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | So glad things went well. This surgery usually has a recovery time of 10-14 days. Hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Glad to see your update, Ankur. You sound like you are making very good progress with your after surgery recovery. Keep up the good work. You will be back to feeling like your self very soon.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | That's all very promising news, Ankur. We're all pulling for you.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | BIG Thank you to all fellas here.
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | | | | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | All attachments removed this morning.
Feeding tube, Treach, and three drain pipes.
Started with liquid and soft foods.
Feel way better.
Last edited by neversmoke; 01-30-2014 01:00 PM.
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | | | | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | Back home after 12 days now. Waiting next treatment phase that is radiation. On a follow up appointment with ENT, clearly mentioned that chemo is not required; only radiation will secure all possibilities. He asked me to see in six months.
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | | | | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | Christine,
Thank you so much for appreciation. Yes, I am back home now and doing rally good. Starting to work tomorrow 2/3.
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Sounds like you have made a very fast recovery. So happy to hear you are well enough to return to work already.
Good luck tomorrow!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Ankur, that's all fantastic to hear. I send continued good vibes. You're amazing!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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