| Joined: May 2013 Posts: 69 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: May 2013 Posts: 69 | Has anyone on here been using the nicotine gum or mints for years and ended up with mouth cancer? | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I have not seen any of our members discuss this as being the cause of their cancer. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | See if any of the ingredients in the patches have any known carcinogens. I think any chemical has potential in some, and may depend on length of exposure, usage, even if they say it's safe, FDA approved. I used listerine mouthwash excessively for decades, and wonder about the high alcohol content, and ambersol on my back gum area for quite a while, and it contains a carcinogen to have contributed to me having tonsil cancer. A google search may help. Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: May 2013 Posts: 69 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: May 2013 Posts: 69 | Hi Paul
Thanks so much for writing to me. I actually think whats going on with my tongue pain at the back where the red white tissue and pain is, is coming from my tonsils as there is some strange tissue on the other side also near the tonsil. This is all happening so quickly, its really frightening. I see the oral surgeon who actually range me himself when i rang the clinic to report what had been happening. I know tonsils are not his thing but im hoping he can give me insight when he sees whats happening in my oral cavity. I have a lot of pain in my back soft palate tongue right now and feeling very tired and run down. My neck is sore and i also have a hard node on the rit side and pain in my neck on the left side. I have a great family but yeah partner is denial and that hurts. He just doesnt want to understand this right now even though the consultant was straight on the phone and very understanding and quick to get me in. I saw a gp about my odd bumpy tonsil and asked her threw years ago why one tonsil was lumpy and one completely opposite, smooth and out of sight. Now i dread i didnt get a second opinion. I have a five year old child and im ever more tired and in pain but emotionally and physically. | | | | Joined: May 2013 Posts: 69 "OCF across the pond" Supporting Member (50+ posts) | OP "OCF across the pond" Supporting Member (50+ posts) Joined: May 2013 Posts: 69 | Thanks Christine, i am actually starting to think i am wrong about the mints. Everything is changing so quickly. I will see the surgeon tuesday. Thanks to all on here, this site is such a support for people x | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Tasmin, The best thing is to get checked out by the appropriate specialist like an ENT, but your symptoms can easily be one of the hundreds of oral conditions other than cancet. Tonsils can be asymmetrical, and be different, and have differnt features, I believe. The solid, enlarged lymph node lasting more than several weeks should be looked into, can be related. and usually a round of antibiotics are given, which if doesn't resolve, further tests, scans are ordered, even an FNAB, Fine Needle Aspirational Biopsy, to rule out concer, and obtain further histology from it.
Good luck with everything, and keep us posted. The unknown is very tiring, stressful, but you're on the right tract to be examined.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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