Se�or Pesce, I am curious why you want to know at this point. I would guess because you are a numbers guy and have been looking at statistical recurrence rates for HPV+ vs HPV-. I think the more relevant thing to consider is the stage of your cancer. You were very fortunate to have found it so early.

Makes no sense why these disappear.

Maybe it is the long length or maybe some words are kicking it out or maybe I'm just screwed but we will never know unless I can figure out why the f*ck this happens so regularly and it is so annoying and really takes away the fun of being able to post anything but one line although I am the King of One-liners anyway so maybe I keep typing just to see if the length has much to do but maybe the micro moon isn't aligning right with the stars and all that kind of stuff that could explain a lot of things to someone I suppose.

As I understand it, they disappear because instead of typing a post directly into the posting box, the message is written on another area, like Word and then copied and pasted into this box. That's what happened to me, anyway.

Im sorry if it is frustrating.

The blank posts are a known issue when copy/paste is used. This is due to copy/paste picking up "ghost" characters. If you type directly into the box it should not go appear blank.


Sorry about the temporary hijack! Please lets get back to the original topic.....

I directly typed into the Quick Reply box, viewed after submit but then the post disappeared when I was redirected, the same as before. I have never used copy and paste and I'm not sure if ghost characters can be submitted via keyboard. All instances of phantom posts have occurred on an iPad and never on a PC. I'm more suspicious of the iPad at this point. Even on Internet browsing, the iPad has slightly different results of similar keystrokes which leads me to suspect something about the keyboard mapping/translation of the iPad.

Also, in all instances longer content posts only resulted in phantom posts. Short content always submits fine. Lastly, corrections are always done on long posts before submitting.

I hope this additional information assists the technical support staff assigned to this. Maybe it is as simple as a double key press creating a control character not understood by the forum software.

Re the original topic " Is there anyone out there who had SCC in the front of tongue who was HPV +?" My son, a non-smoker had SCC under his tongue on the right side His doctors said because of his age and being a non-smoker, it was possible it was HPV related and would have a more successful recovery rate. They never mentioned testing and it was never requested. You can request that they test the tissue for HPV, if they still have the tissue.

About 7% of oral cancers on the mobile tongue have no known etiology. No HPV, no tobacco, no alcohol. Obviously this is some shared lifestyle issue or a genetic predisposition, but the truth is in that small percentage of people at this time we do not know what is causing them. HPV is almost exclusively found in the posterior mouth, I have yet to meet an anterior tongue HPV patient. We do know that some unusual oncogenic HPV's can be found in studies on the anterior tongue, but they are pretty rare, and because they are different than HPV16 we have no data on long term outcomes. They are HPV 33, 31, and 35. Testing for these particular sub types would have to be done at a university research facility and is out of the realm of ordinary pathology labs. They likely never discussed testing since the treatment would be the same whether it was HPV+ or not at this point in time.

Thank you for your replies. David, I was trying to obtain information from the group since I couldn't find anything on the internet regarding HPV in front oral tongue. I would have approached the hospital to test it if I didn't find my answer on the pathology report. The finding was HPV- located on the last page. There is a great deal of information to go through in order to be my best advocate for treatment.

Mine is on the side of my tongue, originally further back but still in my mouth. The first biopsy did test HPV+. They did not test this recurrence but I would imagine it is the same. It happens, who knows why.

My husband had a large T3-T4/N0/M0 tumor in the middle back of his oral tongue. He was NOT tested for HPV. He would have lost over 75% of his tongue and the ENT was talking possible laryngectomy, permanent feeding tube, etc. and he opted for chemoradiation from another facility. He finished treatment 1/19/2013 and had a complete response to treatment; he is NED.

I'm saying all this to say I know HPV+ cancers are associated with the oropharynx but he had an old scar on his tongue right where the tumor developed and we think he may have had BOT otherwise. His previous wife had cervical cancer at age 23.

I read an article/paper on Medscape early on that I seemed to remember was from S. Korea from 2011 that said they were finding 35% of oral tongue cancers that were tested were HPV16+. I think if oral tongue cancers were routinely tested as well as BOT and tonsil cancers we'd see a chunk of these cases are HPV+ as well.