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| | Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) |  "OCF Canuck" Senior Member (100+ posts)
Joined: Sep 2013 Posts: 105 | Hi Curt,
I can't get over how brave and optimistic you are through such difficult treatments! Attitude really makes a world of difference, thank you for the updates on how you dealt with it all. What trial treatment helped to protect you mouth and throat from soars and mucus build up?
Best to you each and every day, Sophie
husband 61@diagnosis painter
6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis
17/9/13 Dx(moderately aggressive)
24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube
2/01/14 (30 tx)rads 60gy
N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes)
Clear margin, close 2mm inner cheek
15/05/14 cellulitis
3/12/14 Chest CT Clear
27/02/15 cellulitis
8/6/15 cellulitis
10/6/15 Osteomyelitis
| | | | | Joined: Oct 2013 Posts: 33 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Oct 2013 Posts: 33 | Everyone,
I am finally finished and now I have three month wait before I get the PET to see if I am clear. I have a feeling it is going to be a long wait. I am just ready to get on with my life. I guess for now I will focus on getting back in shape and getting some strength back. Illinois weather is terrible so I am going to have to look into renewing my YMCA membership. Feeling good now that I am done so we will see how the workouts go. I have heard horror stories where others were tired for months afterwards. Hoping to dodge that one if possible. Any suggestions?
Curt
Age 43, nonsmoking, social drinker
Left tonsil cancer
SCC HPV+16
Stage IV
tonsillectomy, robotic radical tonsillectomy and neck dissection
4 of the nodes removed had cancer. 2 had extra capsular spread.
3x cisplatin 33x rad 11/18/13
Completed treatment 01/08/14
| | | | | Joined: Sep 2013 Posts: 28 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2013 Posts: 28 | I am 9 weeks post treatment as of today. Fatigue was really an issue the first few weeks but has gotten dramatically better since. Instead of coming home from work everyday and napping for a few hours I only do it maybe one day a week now. Hang in there.
47, Non-smoker, moderate drinker
7/13 Found a lump on my neck
8/08/13 Dx HPV 16+ SCC right tonsil
8/19/13 Biopsy and neck dissection, 38 lymph nodes removed 2+ for cancer
9/23/13 Start 33 radiation treatments & 4 x Carboplatin/Taxol, 3 x Taxol only
11/07/13 Last radiation treatment
01/03/14 Post treatment CT scan looks good
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