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| | Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) |  "OCF Canuck" Senior Member (100+ posts)
Joined: Sep 2013 Posts: 105 | Hi Ankur, my thoughts are with you,
Hope you have a family member stay with you during the initial stage of recovery.
Try to keep busy, bring a book, cross work or scratch and wins while you are waiting, Sophie
husband 61@diagnosis painter
6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis
17/9/13 Dx(moderately aggressive)
24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube
2/01/14 (30 tx)rads 60gy
N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes)
Clear margin, close 2mm inner cheek
15/05/14 cellulitis
3/12/14 Chest CT Clear
27/02/15 cellulitis
8/6/15 cellulitis
10/6/15 Osteomyelitis
| | | | | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | Sophie,
Thanks for all your well wishes.
Matter of fact, I arranged to have multiple activities like you explained. I am a tech guy and feel better online over laptop and iPad. I definitely engage myself some how. Moreover, my employer decided to allow me to work from home as much as I feel better with no force. So staying in touch with the office colleagues will be another flavor and a different psychological form factor during recovery period.
Maintaining clear head out of and away from sick and painful thoughts is an important key. Positive stimuli reacts better in recovery process.
I hope this will work.
Thanks and good luck to all lovable members here....
Last edited by neversmoke; 01-07-2014 06:22 PM.
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | | | | Joined: Nov 2013 Posts: 37 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Nov 2013 Posts: 37 | Neversmoke,
The answers to your questions are 1. close to half of my tongue was removed...I had a tumor on the lateral left and they made the cut in the shape of a banana. 2. I was offered reconstructive surgery and advised to take it because of how much tongue they were taking. 3. The functionality with the remaining portion is amazing! Even with the right side being the only active portion of tongue left I have started to maneuver food from the left side to the right. My taste buds are in tact and I still have a great palet. The only drawback was they used part of my chin...which I now have hairy tongue...Its not really an issue and is hard for others to see since its on the lateral side.
Fish
SCC front left lateral tongue T2N0M0 After neck dissection. partial glossectomy 12/26/13. Perinueral Invasion. IMRT 60gy 30 treatments beginning 2/5/14 through 3/19/14.
| | | | | Joined: Dec 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Dec 2013 Posts: 78 | Fish,
thank you so much for taking time to answer my questions. I will keep you posted by Friday. I am finalizing treatment blueprint. Draft is on table, Finalizing this week and next week, I'll be on a surgical table.
Beauty of this forum is, it makes you aware and helps to prepare for every possible scenario with least anxiety and frustration. Ability to make well informed decision leaves you happy. This is all about this forum does.
Thanks everyone.
Special thanks to OCF and all respected members here for their support
Ankur, 37, T1N2M0
12/13: Biopsy and results
01/14: Partial Hemiglossectomy (1/3 tongue) and a Flap Reconstruction
Right neck dissection. 3/42 nodes positive and removed
Speech (80%) and swallow (100%) restored within 5 weeks after surgery(3/1/14)
03/14: 30 IMRT Appointments Started 3/17 (No CT)
04/14: Radiation treatments completed
07/14: PET - All Clear | | |
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