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That is an interesting question that I don't know the answer too. Did the HPV reside only in the cancerous tissue that was removed.

Even if some tumor was still present and the rest of the tumor was killed by radiation and or chemo, does that mean the virus was also killed. I think viruses are among the must durable things on the planet, so I would have a tendency to think no, it's still present.

Now as for your frisky wife. I think you have probably had the virus long before you developed cancer. So, that means your wife was likely exposed to it long ago. Will she get cancer from it, or will she be a member of the large majority that clears it normally via her immune system ... who knows.

Since she has in all likelihood already been exposed, what's the use of closing the henhouse door after the wolf has already eaten the chickens. I remember one other guy on this forum who has been HPV positive for like 25+ years and maintained a normal sex life with his wife (including oral) for all those years and she has never developed oral cancer. All that proves is that she is likely a member of the clear it normally majority -or- that in her case the virus has an incredibly long gestation period.

I wish I could give a definitive answer, it will be interesting to see what others have to say.

Tony

Last edited by n74tg; 01-07-2014 07:27 PM.

Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

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"OCF Kiwi Down Under"
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I think there was a study done in the last 2 years on this subject.
I remember that the result showed that no spouse was harmed by continuing a couples normal sex life.
Paul B do you remember or have the link to this?
I really do not see why this is an issue. Kris was obviously exposed many years ago. I continue to be well.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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Muffy, I would like to comment on something you wrote...... it may be true that only 15% of smokers get lung cancer .... BUT..... did you know 90% of lung cancer is caused by smoking? Thats quite a different way of looking at it isnt it?


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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FWIW, there must be other ways of passing this virus because mine is the HPV, I only had one boyfriend before my husband, and oral sex was NEVER part of the picture. My doctors are baffled. This is just to say. . . There is so much we don't know that fretting is pointless. I still wrack my brain to see if there was some vector of transmission I have overlooked, and I still come up blank.

Hope your treatment goes well and you can move past this misery!


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery
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"OCF Canuck"
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It could have been that one boyfriend or your husband - it's a virus - it becomes active and then resolves - HPV is a blanket name for over 40 different strains. My sister in law had never been sexually active until she went away in university and did a course in Europe - she met a guy they became involved (they long distance dated for several years - got engaged - broke up) after they broke up she was dx'd with HPV because she had some kind of an outbreak. It only takes once and sadly HPV doesn't show up on any tests except for a cervical cancer screening in women. Or a biopsy of cancerous tissue. Many people who caught HPV can be asymptomatic - and never know they've been exposed.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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Google cannabis, HPV and oral cancer. You'll see a lot of info about a possible no-sex connection to passing the HPV virus by passing an HPV saliva tainted cigarette. It makes sense. Think about it. If HPV lives in your throat and you're coughing from inhaling hot smoke, the virus could surely be moved to the tip of your tongue or on your lips where it could survive long enough to take a warm, wet ride to someone else's mouth.


57 @ Dx, Stg IV BOT (1.5cm), lymph nodes (lrgst 2.5cm), non-smoker, casual drinker and exercise nut, Cisplatin x 2, Erbetux w/IMRT x 35/70Gy, PEG, Treated in San Antonio @ CTRC 12/16/08-1/27/09.
3/5/09-CT
6/12/09-PET, PEG out
12/1/09-CT
12/6/10-PET
12-8/11-CT
1-4/13-CT
(all clean)
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French kissing is a vector.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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There are a few cases which HPV-16 were found on fingers too' and read of one that was HPV-16 cancer.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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There is HPV+, there is also having an active HPV virus, and there is p16 positivity. I know the test for the presence of HPV is indicated by a p16 cell stain.
Can somebody please explain this? I am really confused now

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"Above & Beyond" Member (500+ posts)
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Muffy - your last post on any forum was 4 days ago. Did you get abducted by aliens or something? I know 4 days isn't that long, but as a newbie I was posting questions everyday in the beginning.

Tony


Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good

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