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Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jan 2013
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Thanks Leslie,

I forgot to record the program but caught it via your link. As you say, it was far more than a ten second mea culpa and the interview with the head of vaccinations at CDC is about as credible a talking head as there is.

There are over 2,500 comments - I scanned a few, many mis and under informed commenters. There is no hope for those who question the safety and efficacy of drugs that make it through all the trials and finally get FDA approval.

Thanks
Don


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
We do need to continue to spread awareness and information in every way possible - friends, family, social media, awareness walks, sharing OCF info with your dentist or doctor, etc., but in a way that will not offend nor irritate those those who are reluctant to accept new information. They may have been emotionally influenced by a constant barrage of mis-information (a.k.a "brainwashing") and it may take a while for new stuff to sink in. Irritating them will only make them sink deeper into the cesspool of misinformation. You cannot "make" someone do or think something they are incapable or unwilling to do. And some just get confused with facts. So it's better to play nice.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



Joined: Mar 2002
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OCF Founder
Patient Advocate (old timer, 2000 posts)
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OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
Reading the trolls comments and ignorance of facts is disheartening. But it really doesn't matter what the conversation is about, the Internet has allow and facilitated not only the spread of good information but a place for those with skewed information, or hidden agendas to also become quite vocal. The screen name allows anyone to hide behind it and that is also part of the problem, people will say things they might not without the anonymity. The other issue is that on the internet the loudest and most persistent voices get the majority of the space, not the most knowledgable or educated ones.

This environment isn't going to change. All we can do is tell our stories, and put out good information in a non pushy way when we have the opportunity. It's a sad observation on the situation, but it is the same in politics or any other subject of controversy. Our fight goes on for science based information that will help people avoid our disease.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Nov 2013
Posts: 104
Senior Member (100+ posts)
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Senior Member (100+ posts)

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Posts: 104
News is out she was dropped by ABC


Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
Joined: Jul 2009
Posts: 1,406
Patient Advocate (1000+ posts)
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Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,406
I read that in today's LA Times as well, Brian. Such a shame....


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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