| | Joined: Aug 2013 Posts: 31 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Aug 2013 Posts: 31 | Hey everyone, I went without internet for a couple of months due to financial issues, but am so happy to have it back. I had surgery this Monday, I am still in a lot of pain, baby is 23 weeks now and is a boy  So far he is doing fine, but still get very nervous due to meds and everything he is going through. The doctor said they got negative margins, I am not sure exactly what that means but I am assuming its good thing. I go Wednesday for the full pathology report and final diagnoses, hoping for the best with it. I am just going to add what a crappy place the mouth is to have work done, I feel for everyone here and what strong people you all are <3
DX with MEC salivary gland 8/20/2013 age 27 F 9 weeks pregnant
Jessica, Mother to a 4 and 9 year old
11/18/2013 surgery to removed tumor, including bilateral jaw muscle. 2nd Trimester.
12/2/2013 results came back for clear margins
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Hi Jessica! Yes, its been a while. Glad to see you are back Im sure you must be so relieved the surgery is over. Hope you are able to rest during your recovery. I know its not easy when you have little ones running around. Best wishes with your upcoming appointment.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Hi Jessica:
After reading your post above I just thought I had it bad, but I can't hold a candle to your situation. My hat is off to you.
I think negative margins is what you want to hear, meaning no cancer. They also use the term clear margins, as in clear of cancer.
I'm not sure of what MEC is, that's one abbreviation I haven't come across yet.
I suppose in the Zen nature of things the good about all this is you don't have time to wonder about your results or worry about anything C related. With two other children and one in the oven so to speak you are probably at max overload already.
Here's hoping others step up and handle the details of upcoming Thanksgiving.
take care, let us know the results, we're here to help in the way you desire.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | So glad you're back and your baby is doing well! hopefully your news will be all good!!! 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2013 Posts: 94 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Sep 2013 Posts: 94 | Very glad to hear that the baby is well!
Negative, or clear margins, are very good news, it means that edges of the removed cancerous tissue were cancer-free.
36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound
| | | | | Joined: Aug 2013 Posts: 31 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Aug 2013 Posts: 31 | Thanks for the replies:) My mouth still hurts, especially my jaw. I cannot open my mouth very well at all and I stuck my finger in there the other day (feeling brave) and the whole side of my cheek in the back is hard as a rock.. kind of disgusting. I am just so glad to be done for now. Wishing you all the best.
DX with MEC salivary gland 8/20/2013 age 27 F 9 weeks pregnant
Jessica, Mother to a 4 and 9 year old
11/18/2013 surgery to removed tumor, including bilateral jaw muscle. 2nd Trimester.
12/2/2013 results came back for clear margins
| | | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2006 Posts: 720 Likes: 1 | [quote=n74tg]I'm not sure of what MEC is, that's one abbreviation I haven't come across yet.[/quote] MEC = mucoepidermoid carcinoma. (More info here if you're interested.)
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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