| Joined: Oct 2012 Posts: 143 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 143 | Joyce has been in the hospital since last Tuesday. She had stomach infection due to the peg. HOWEVER, we found out today that it is also due to the lesion she has on her face. It never healed. She has sepsis now. The infection is now on her blood stream. We need prayers from all of you.
Joyce March 1940 to January 2014 A wife, a mother, grandmother and great grandmother. She fought oral cancer from late 2009 to Early 2014. 2 Timothy 4:7 I have fought the good fight, I have finished the race, I have kept the faith.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 6 | So sorry to hear about Joyce! Is she in the US now?
I will keep Joyce in my thoughts and prayers. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Sorry to hear... Usually cancer doesn't heal so it's not surprising, however wounds can be kept clean - though the longer they remain open the better the chance of infection. Sadly sepsis is deadly. My mom died of it within a week. It's a blood infection that is resistant to treatment. I do hope the best for her.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | I'm sorry to hear. They usually take out the peg and port in sepsis cases, if that is the suspected source or as a precaution, but not sure in this situation. I had sepsis, septic shock, invasive candiasis, many others, back in 2009/10, which took many months to recover. Prayers for Joyce.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | Ina,
I'm very sorry to hear this. Joyce has been through so much and I'm sure the love of you and the rest of her family has helped her fight this battle. I will definitely keep her in my prayers.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Aug 2011 Posts: 269 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: Aug 2011 Posts: 269 | Prayed and will pray again for Joyce.
Nancy (53 at dx) Metastatic SCC. Stage III. HPV positive with occult primary. N1, no ecs 7/1/11 - L-Selective neck dissection. Tonsillectomy. All clean. No rad, no chemo. 5/29/13 - Found primary 7/3/13 - TORS 7/8/13 - Emergency Surgery/Blood vessel burst in throat 8/9/13 - Peg in 9/3/13 - Radiation starts 30 IMRT, 60gy BOT, 56gy both sides of neck 10/14/13 - Radiation ended! 11/12/13 - PEG out!
| | | | Joined: Oct 2012 Posts: 143 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 143 | Yesterday evening my sister-in-law was able to talk to the oncologist of Joyce.
* Joyce is critical but stable condition. * Joyce is receiving IV Infused Antibiotics and is monitored by an infectious disease specialist. * Joyce is not in the USA. * Doctors believe that the infection could have started from the lesion on her face. This lesion or ulcer did not heal despite 35 sessions of radiation. * Joyce has stomach infection. * WBC upon arrival in the hospital was 30,000. As of yesterday 22,000. * Per Doctor, they believe she can survive this infection. Her will to live is so strong. However, we were advised to plan for the worst and hope for the best. * My sister-in-law is going home next week to be with them. * I am not sure if doctor's could predict the life expectancy of a patient but she was given a year. (If she survies the sepsis).
I will pray for all of you and please include Joyce in your prayers.
Last edited by Ina; 12-11-2013 01:49 PM.
Joyce March 1940 to January 2014 A wife, a mother, grandmother and great grandmother. She fought oral cancer from late 2009 to Early 2014. 2 Timothy 4:7 I have fought the good fight, I have finished the race, I have kept the faith.
| | | | Joined: Oct 2011 Posts: 225 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Oct 2011 Posts: 225 | Joyce and her whole family are in in my prayers.
Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good. | | | | Joined: Sep 2013 Posts: 9 Member | Member Joined: Sep 2013 Posts: 9 | Praying for Joyce and all who love her and all who are working to heal her.
Wife/Caregiver 6/5 ENT visit 6/11 FNA biopsy on lymph node 6/13 DX T2N2b stage 4 SCC on right tonsil metastasis to lymph nodes on right side 7/8 first chemo using Cetuximab 8/20 radiation oncologist initial visit 8/21 dental clearance Cisplatin and Radiation starting Sept 9 2nd Cisplatin Oct 1 Radiation completed 10/24 | | | | Joined: Oct 2012 Posts: 143 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 143 | Tomorrow she will be in the hospital for 2 weeks. She had blood transfusion due to the sepsis. They said they have the infection under control and she may be released soon. The doctor said they have done everything for her in the hospital and she only needs 24/7 monitoring. She could either move to a nursing facility or home with a nurse visiting her. At this point, I don't know what they will do.
Joyce March 1940 to January 2014 A wife, a mother, grandmother and great grandmother. She fought oral cancer from late 2009 to Early 2014. 2 Timothy 4:7 I have fought the good fight, I have finished the race, I have kept the faith.
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | That's good if Joyce gets out of the hospital. Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Oct 2012 Posts: 143 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Oct 2012 Posts: 143 | Belated Merry Christmas and Happy New Year to all! Happy Holidays!!
Joyce was sent home last Sunday so she spent Christmas at home. She has a private nurse and a care giver that watches her 24/7. The doctors are amazed about her will to live. Unfortunately the cancer (lesion, tumor) on her face grew to the size of a dollar coin and is so deep that you can see the inside of her oral cavity. In particular the location of the where the titanium implants are. She is in so much pain that she is unable to speak and open her mouth.
Joyce is definitely a fighter. We are not sure if she would still be able to travel to be with us. The doctors told them that she has to stop every so often and a medical staff needs to fly with her aside from family.
Continue to pray for her.
Take care everybody.
Joyce March 1940 to January 2014 A wife, a mother, grandmother and great grandmother. She fought oral cancer from late 2009 to Early 2014. 2 Timothy 4:7 I have fought the good fight, I have finished the race, I have kept the faith.
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I'm glad Joyce was able to spend Christmas at home. So sorry things are progressing to this point.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Enjoy the holidays with Joyce for as long as you can.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
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