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And as to putting up anything on Katie's site, don't bother, the comments thread (1000's of them) has brought out all the tinfoil hats anti vaccination people. I must say that after watching the show that I am particularly disappointed in a woman who has been a cancer advocate after her husband died, has been a core part of starting and funding quality organizations related to colon cancer, and is part of the Stand Up 2 Cancer effort that OCF is a strategic partner to. All I can say is that given that history, I feel betrayed right now. She doesn't need a ratings boost. This was a completely unnecessary, self inflicted wound to her credibility as an advocate.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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Great article! I posted it on my FB page and expressed my disappointment in her lack of attention to facts. Ms. C. probably does not have a wrecking ball and has to use this way of getting attention and increase ratings.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



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Than you Brian, well put. They should have had some HPV cancer patients on the show.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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Disappointing and disgusting!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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After watching the recording of the show today, it is about what I expected and par for the course. As a TV talk/variety/entertainment show it's primary goal is to bring eyeballs to the show, so liberal strokes of drama and bias are applied as necessary to juice up the topic.

After filtering out all the TV fluff, the message of both medical experts was do your research and consult with the doctor, then make your decision. One did state her opinion for the shots while the other was more oblique but clearly implied it was difficult to recommend getting the series due to the "risks".

The two stories offered the obligatory balance, one side clearly working the emotional/empathy angle.

The fatal flaw for me was comparing a pap smear test, a diagnostic procedure, with a targeted preventative vaccination, destroying any remaining credibility.

So what if the show throws the anti vaccine crowd a bone? If you are in that camp then there would be very little to convert any in that crowd anyway. If not, I just hope viewers listened to the common advice to research and seek the doctor's expertise then take a position and decision. But in this day of 5 minute video clips and void of critical thinking, it is sad the majority will likely take away the HPV virus is something to be avoided.

Very sad,
Don


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
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Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Mar 2002
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Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Mar 2002
Posts: 4,912
Likes: 52
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Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
Joined: Jul 2009
Posts: 1,406
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All just indicative of the state of our media today. Who cares about facts? Man, you read some of the comments on those article links and you realize that we haven't come very far from the Dark Ages.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
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