| | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OP  OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Please read the second comment under the story. This is really sad that in the names of ratings that the show would pander to misinformation. As the poster stated how did that work out for Laura Logan on 60 minutes�. http://blogs.plos.org/thepanicvirus...-mongering-with-show-on-the-hpv-vaccine/
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Nov 2013 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Nov 2013 Posts: 104 | Without fabricated misinformation, these people would have to actually report actual news... How could they pander to the pearl-clutchers with fact based news?
Brian
Stage IV TxN2aM0 HPV+ SCC 38 y.o. male
9/20/13 Sentinel Node Found
12/5/13 Start of 72Gy and 5 bags of Cisplatin
1/21/14 Treatment Ends
1/25/15 1 Yr clear
| | | | | Joined: Oct 2011 Posts: 225 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Oct 2011 Posts: 225 | Oh dear - 3 steps forward then two steps back. Sadly you can't legislate against stupidity.
Brother 49yo DX 22/6/11 Tonsil SCC HPV+ Stage IV T4N1(?)M0. Carbo/docetaxel (Taxotere)19/7, 11/8 (with E-tux), 1/9; E-tux 11/8, 25/8, 15/9, 30/9, 14/10, 28/10; IMRT X 35 (70gy tumour;63gy nodes;56gy gen area) 19/9-4/11/11. Clear PET scan 1/2/12. 1 and 2 year post treatment checks good.
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 1 | I don't follow Katie Couric, like all other celebrities too, but she had cancer herself, I think someone in her family passed as well from cancer, and hear Katie Couric advocates for cancer often, and even had a show on last year on different cancer survivors, including oral cancer, which day I was supposed to be in the studio audience, but the snow canceled our plans, so I don't know what this turn around is all about. It was her husband who died of colon cancer, and the gastrointestinal research at New York Presbyterian Hospital is named in his honor. The TV episode I was referring had Dr. Marshall Posner, a head and neck specialist at Mount Sinai, who deals with HPV was on with an actress whose husband died of oral cancer.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | Then she's a dumbass and frankly I have no patience for talk show hosts - they tend to sensationalize for ratings and generally pander to the gullible and uneducated masses. (before someone freaks out over the last comment - I do not mean that people are uneducated in general - I just mean on certain topics they are (if you're a mechanic - what do you know about brain surgery - unless you were forced by circumstances to learn?) Unfortunately, a lot of people believe that what they hear on TV is fact.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Well since we all agree, please comment on the shows web site today about what a disservice to the issue this is. Do it politely but firmly if you want it to not get cut. I think we need to be a voice against this kind of thing. Misinformation when allowed to prosper, only begets more misinformation. People are dying from our disease and the next generation has an opportunity never available before to side step ever getting an HPV cancer. She is undermining that. As a cancer advocate herself and one of the founding members of Stand Up 2 Cancer, this is really embarrassing. But comments to the show will get seen. State that you ante a cancer survivor, patient so that the comment has more weight than just something coming from the public.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,291 Likes: 1 | Well, let's at least wait to see the show. Better to be fully informed before blasting away.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | How disappointing, Katie Couric seems to have gone the way of what's good for the ratings. I've seen the story several times about the mother whose daughter died after receiving the vaccine. It's been getting a lot of attention by the anti Vac groups, when she could very well have died from other causes. All those who jump on that bandwagon do not seem interested in doing the research about the success that has occurred in other countries. The anti bad websites are more interested in selling their products than in staying with the truth. They will change parts of a story so as to slant it for their own purposes. Here are some sites that refute their claims: Re Natural News and Mercola links: http://skeptoid.com/episodes/4283re Natural News and Mercola See #1 and #6 Re Sanevax: http://forthesakeofscience.com/2011/09/08/how-shady-can-these-anti-vax-groups-get/Refutes Sanevax position on Gardasil vaccination Re VAERS (Vaccine Adverse Event Reporting System): http://quackwatch.com/search/webglimpse.cgi?ID=1&query=VAERSHow misconceptions about immunizations occur. And OCF has some great links: http://oralcancernews.org/wp/emergence-of-HPV-16-and-sexually-transmiitted-oral-cancer/Sexually transmitted oral cancer Spike in Oral Cancers Puzzles Experts http://oralcancernews.org/wp/spike-in-oral-cancers-puzzles-experts/Spike in Oral Cancers Puzzles Experts http://www.oralcancerfoundation.org/HPV/The oral cancer connection
Last edited by Brian Hill; 12-04-2013 09:50 PM.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OP OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Mathew Herper is one of the most respected medical tech writers out there. This is his column after the Katie Couric Show today http://www.forbes.com/sites/matthew...ouric-stacked-the-deck-against-gardasil/
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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