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Keep experimenting and make water a must. It helped me to drink bottled to keep track of the amount plus lukewarm was better. Also a rinse with sprite zero will cut the mucous and give some relief. Small shakes can soothe but be careful of what goes in because of irritation. My wife made one every night with coffee ice cream and milk. Eventually make the high protein ones. Again everything is an experiment.


Age 55 HPV 16+ SCC, BOT 050613 Stage IV
great team at OSU
Tx 6 weeks of rad started June 3
8 weeks of chemo started May 28
RTOG Phase III trial Cetuximab group.
Treatment completed 7/16/2013
PET Scan completed 10/08/13
Results discussed 10/11/13
NED - Free but am I
Next part of the journey?
1year PET 10/24/14 NED
Good reports now 10 years out.
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It really is the most frustrating time. You are right; you go from the high of being done with tx and then the garbage starts. It hopefully will be slowly getting better in a few weeks. He is in the hardest part of the battle right now. Do what you can to push him without ticking him off too much!!
We finished tx the 3rd week in October and Kev ate some of Thanksgiving dinner that year. Everyone proceeds at a different pace though, but know there are better times coming.
It would be good for him to begin taking things by mouth. There are meds that can numb things up for a few minutes so he can swallow.
Blessings,
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14
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Can anyone give me a timeframe as to when all this mucous will end? I've heard 2 weeks, but he's already past that and it's getting worse not better. He coughs so much and gags, then throws everything up. So his weight is down naturally and I'm really concerned about that. He is using his tube and getting scandi/boost down. But then he just throws it all up. The weird thing is the vomiting only happens at night? We are all so frustrated and worried. I feel like we've tried everything(mucinex,suction, scopolamine patch, benadryl, gargling, hot soup) and NONE of that seems to help at all. I just feel so bad for him because he's exhausted from hacking up the mucous constantly all day/night long. Suggestions? Advice as to when this will end?
Much Appreciated!


Caregiver to my Dad
BOT Stage IV SCC, HPV+
Dx on 9/9/13
Cisplatinx3- 1st dose 10/1/13
PEG in 10/20/13
PEG out 12/24/13
Rads x 35- finished 11/15/13
Never a smoker,drinker.
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Are you suctioning it out? That was what I did for weeks to get the thick stuff out of the throat. It was real brown for a while. Then it turned clear and slowed down.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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Could be 3 weeks, longer, and radiation keeps working just as long as treatment lasted, and everyone is different. The thick rope mucus is mainly from the parotid gland producing mainly thick mucus, which as a yellow tinge to it. Radiation destroys thin mucous only, and the other produce a mixture of both.,

Sleeping on an incline may with with gagging, a steam bath may help loosen it, drinking enough water, have your oncologist spray your mouth, usevacwater IOC at home on low, the are sponge wooden stick, some pre-moisturizer to clean mouth, get in hard to reach area in the back of the mouth.

Helps cut mucus
Salt water, making soda
Frequent brushing
Tea
Beer
Egg drop soup
Papaya juice or pinapple juice
Seltzer water or soda
Meat tenderizer rinse mixed with water
Mucinex
robotusm

After feeding do not lay down for several hours, and when raising from bef, do it slowly, which my help with not vomiting.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






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In addition to the above list a water pik using warm water and a little non-alcohol mouthwash using it on its lowest setting helps to get the thick ropey mucous out. That phase usually lasts up to 6 weeks post rads and then seemingly overnight it turns into dry mouth. My mouth was so dry my tongue would be stuck to the roof of my mouth and I had to swish water in my mouth to free it. Hang in there, the thick gunk will be gone soon.

If you ask your doc for a prescription to get a portable suction machine you can suction it out at home.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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I had been using apple cider vinegar mixed with water to help me with thrush and noticed it broke up the mucous in my throat. It may burn a bit so dilute it accordingly. Good Luck. Try a spray bottle

Last edited by calhoun; 12-06-2013 08:45 PM.

Age 54 at DX 06/20/13 Left Neck Mass 07/11/13 DX SCC OC T0N2bM0 Stg IVa p16 neg. 08/09/13 Tonsilectomy and Adnoidectomy, Panendoscopy. Unknown Primary. Begin RAD 09/30/13 Cisplatin 10/01&22/13 PICC 10/21/13. PEG 10/25/13 to 1/24/14. Erbitux x 3. End 35 RAD 11/22/13 Clear PET 02/25/14
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I'm officially one week out of treatments as well, and having the same issue. Did your dad ever find anything that helped cut the mucus? I can't sleep because it all gathers so quickly. I have to cough it up about every 15 minutes to keep from choking and then throwing up everything I was lucky enough to get in my stomach. I haven't slept in almost two weeks...and I'm just exhausted. But I fill a 10 qt bucket daily with 100s of paper towels trying to get the mucus out. It just keeps coming.


- 3cm x 4cm tumor on right side of tongue
5/14: Surgery
- Lymph nodes removed from both sides of neck
33 radiation treatments, 3 cisplatin
8/14: G tube
8/25: Last radiation treatment
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When you go to your doctors ask the nurse to suction out the mucous. Ask your doc for a prescription for a portable suction machine so you can do it yourself at home.

Rinsing with seltzer water, using a waterpik on its lowest setting and continuing to rinse with baking soda, salt and 16 oz of warm water all will help as well. Some members have found relief with gargling with seltzer water.

The thick ropey mucous will only last a few weeks. It will soon be replaced with the dry mouth phase.



Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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Posts: 23
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Hi KaylaCole,
I had lots of mucous after treatment as well. Just trying to brush my teeth would make me gag. Nasal rinses would also make me gag to the point of vomiting.
I would be able to sleep a bit better by elevating my upper body and sleeping with a humidifier. Drinking plenty of water will also help with reducing the thickness of the mucous. I also used guafenesin (an expectorant) which helped keep the mucous thin and out of my lungs.
Hang in there,
Steve



6/5 ENT visit
6/11 FNA biopsy on lymph node
6/13 DX T2N2b stage 4 SCC on right tonsil metastasis to lymph nodes on right side
7/8 first chemo using Cetuximab
8/20 radiation oncologist initial visit
8/21 dental clearance
Cisplatin and Radiation starting Sept 9
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